It is amazing what we have to put ourselves through 🙂 Like everybody else I have had them all. I am now 3 months post SCT on an MM Plateau of below 3. I still suffer from the odd cold spells, normally when I am getting tired. And, I still get the odd itchy spot although that I think is due to the anti-biotitic I take every Saturday and Sunday. Otherwise I am in the clear.
Most days I drink the 6 pints (3 litres) quite easily. I always start first thing in the morning, about 6:30 a.m., with my morning tablets. And I refill the glass and leave it on the side, No 2 is by 10:00 a.m. , No 3 is by 1:00 p.m. , No 4 is by 4:00 p.m. No 5 is always after dinner around 7:00 with my evening tablets and the last one is before I go to bed with my last tablets of the day – Loron. There are days, when I am going out for example, when I do not clear all 6 pints. I just drink as much water as convenient. I was told the 6 pints does not include Tea or Coffee which are Diuretics and do not count.
What NO alcohol. I have been told right from the start and all through my treatment that I can drink alcohol. I drink Guinness, Brandy coke and Red Wine. I checked with the Hospital Pharmacy because I wanted to clear that it was ok to occasionally have a pint in the evening before I took Loron (I have to have 2 clear hours no food or milky drink either side of it). And they always say Guinness is ?Mother Milk? , 😀 . The head honcho in the Pharmacy?s words to me were ?I want you to enjoy yourself none of the tablets has an Alcohol restriction on it. Have fun?. What a nice man 😎 . I would recommend you check with the hospital Pharmacy, give the man a drink.
Kindest regards
David
