[PerkymiteParticipant]

Yes Tracey, I had never heard of Myeloma. In "Waking the dead? one of the characters had been diagnosed with Myeloma. Hey, perhaps we are becoming the ?In? cancer to have!!!!!!
Kindest regards

David

[PerkymiteParticipant]

Hi Ozzy and welcome(?) to the site.

As has been said before this is a very, very individual disease. But if it helps I had my SCT in early December. I left hospital on the 15th December, after a full three weeks of treatment. My taste buds returned on 25th December and I was able to enjoy my Christmas dinner and a pint of Guinness. I was cleared to mix with the human race, and binge out, in early February. I hope this helps.

Kindest regards

David

[PerkymiteParticipant]

That is wonderful, wonderful news I could not be more pleased for you. I hope you are going to still keep in touch now you are Myeloma "clean" 😀 .

Kindest regards

David

[PerkymiteParticipant]

Hi Ian, glad to hear you are still bombing along. In general discussion with my Consultant he expressed the opinion that the effects of treatment get weaker as time goes on. This would in fact fit the pattern you have been given.

Kindest regards

David

[PerkymiteParticipant]

Thanks for that Min, I never did have the eye for detail:-D

[PerkymiteParticipant]

I am getting slightly confused here. Velcade is not Revlimide under a diferent name is it?

If it is not what advantage does Velcade have, just a cheaper treatment than Revlimide or somewhay better?

kindest regards

David

[PerkymiteParticipant]

Great, just up my street 😀

David

[PerkymiteParticipant]

Ahh Dai, You just ruined my week, so sorry to hear the bad news. I thought you were in the clear and up and running. It must be devastating for you, having been given a possible 5 to 8 years.

I did not make remission ? plateaued I am told ? so I am not really expecting too long before I have to go to the next phase. I am just praying for another 12 months of useable life. All the very best of luck to you

VASBYTE my friend vasbyte

David
p.s. Vasbyte is a South African word meaning ? Bite hard

[PerkymiteParticipant]

😀 😀

[u][i][b]Kindest regards[/b][/i][/u]

David

[PerkymiteParticipant]

That is interesting Mari. Did I read your positng correctly, that Steve's PP level was 17 prior to SCT. Can you remember what his pp level was when he did the Stem Cell Harvest?

kindest regards

David

[PerkymiteParticipant]

When I broke my neck my PP level was 39, that was its highest point. Now I have had my SCT my last reading was 2.2. The lowest reading I have ever had was 1.8 two months prior to my SCT.

I was told early on in my diagnosis that most people would have a 1.5 pp rating – the difference being the PP is not active, I think, but I do not know.

Kindest regards

David

[PerkymiteParticipant]

Thanks Bridget:-D

[PerkymiteParticipant]

I am sure one of our members did have an ALLO transplant, and it was not that long ago, unfortunately I cannot remember who it was. Sorry not very helpful but I will keep my brain churning over, it might come to me.

Kindest regards
David

[PerkymiteParticipant]

Must say I enjoy your posts Nigel.

I am not on any treatment at the moment, leaving aside anti-pills for everything, my next appointment with destiny being on the 6th May. I feel great and I am getting loads of jobs done around the house that I know in the future I will not be able to do.

Best of luck with your next round, although I have a feeling you are not the sort of Guy that needs luck:-) .

Kindest regards

David

[PerkymiteParticipant]

Hi Edo, If you can tackle the food problem I feel it might help him with his other problems.

How about a Complan drink made up with milk, ice cream, jelly and a fruit (I used banana or mandarins). I had this drink in hospital after my SCT I just could not eat anything and even water tasted foul. You can get different flavoured drinks and mix different ice creams and jellies to match.

Kindest regareds

David

[Author]

Posts