[PerkymiteParticipant]

Hi Kay, welcome to our little band, sorry you had to join us:-/

I think the Consultants have seen it all before and therefore tend to assume things will take the "normal" (if you can use such a word when talking about Myeloma) route.

I am not a denial person but I can fully understand why some do take that attitude. ParaProtien is the nasty in Myeloma and I use the initials PP to translate to Practical and Positive. I accepted what I have but I am going to fight it to the end:-D

Kindest regards

David

[PerkymiteParticipant]

Well done Tom, and Ron for that matter.
When you say you have "lost" posts do you mean you cannot remember which section you put them in or you post and they just disappear? I have yet to lose, into the ether, a post and I post quite frequently.

I have just received my report from my last visit to my consultant. It is real great when you read things like ?made an excellent recovery? but it is even better when he uses phrases such as ? he should continue for the next 12 months?. Lovely thought ?next 12 months?, ?next 12 months?, ?next 12 months?, ?next 12 months?, ?next 12 months?, ?next 12 months?…………………………………..:-P .

The 12 months bit refers to the Septrin I have to take Saturday and Sunday, it is an anti-biotic. The actual name of the tablets I take are Co-Trimoxazole 960 mg each day. Were/are either of you two on these? You mentioned infections and these apparently are to fight of exactly that.

Kindest regards
David

[PerkymiteParticipant]

I have had PN in both feet following Thalidomide (CDT) treatment, which finished around Feb 2010. I call it sponge foot because that is what it feels like. It does not bother me and I can live with it at the moment. I have been informed, by one of the many consultatants I have seen since diagnosis in July 2009, that it MAY go away but not to hold my breath.

Note for Derek: You do not have to upload a 'photo of yourself each time. click on your name and that will take you to your profile (I think that is what it is called) and you can upload a picture there, as I and others have done.

Kindest regards
David

[PerkymiteParticipant]

Having had a dose of Shingles, that delayed my SCT, just before Christmas I can assure you I do not want another one. I take the anti-viral tablet and like all men I am not a tablet fan:-/

kindest regards

David

[PerkymiteParticipant]

NO, NO Sarah, conkers are used to keep spiders away. My wife religiously collects them every year, drills a little hole in then, and then puts them in corners all around the house. I have got to be honest it does seem to work.

Since coming home from SCT my legs at night have felt "funny" like there is no blood circulating below the knees, normally when I am in bed. I have taken to wearing bed socks and although my feet now get hot sometimes it seems to have cured it and my legs feel great.

(Mental picture for you all; bald old man going upstairs to bed with nightgown, bed socks, little cap with tassel and candle:-D 😀 😀 ) God, is that really ME, well not quite I have exaggerated a bit – I don?t have a candle 😉

[PerkymiteParticipant]

Very interesting, I can trace my family back to 1645, but, I would suspect, that the last 4 generations are the only ones that the cause of death can be really confirmed. Nobody died of cancer as far as I can ascertain, having said that, I am the first [u]male[/u] Marriott to live past 55 for the last 3 generations so perhaps they did not live long enough!

kindest regards

David

[PerkymiteParticipant]

you are a ahead of me again Gaye 😉 David

[PerkymiteParticipant]

You are a real inspiration of what a person can achieve if he wants to get off his a*se and "just do it". Great. Now where did I put my penny whistle?

Kindest regards

David

[PerkymiteParticipant]

Well done Roz, a sad occasion I know but very well done. They will respond to your generous donation I am sure

Kindest regards

David

[PerkymiteParticipant]

Congratulations to all concerned 😀

[PerkymiteParticipant]

Thanks Sean, yes, now I understand, how very disappointing for you.

I went to the hospital Macmillan Nurse as well. A tip my friend do not be a bl**dy hero. If you need help at night say so, enough said.

Kindest regards

David

[PerkymiteParticipant]

I have not received any such email. That sounds wrong you are right to be very wary Dai

kindest Regards

david

[PerkymiteParticipant]

I cannot help with information on your mum's pending "infusion".

I take Loron – Sodium Clodronate every day to "bind the bones and stop calcium leaching off them" or at least that is what I think it is for 😀 I have been taking these for at lease 18 months now. No side affects as far as I can ascertain.

kindest regards

David

[PerkymiteParticipant]

Good luck with the Trial you two I hope all goes well.

Kindest regards
David

[PerkymiteParticipant]

My wife says when you stand in front of the mirror you gotta turn sideways for it to have a real affect:'-( :'-( 😉

[Author]

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