Hi Sarah
Have a good holiday, and enjoy yourselves.

Roz

Hi Ruth

Sorry to hear about your bad news.

My husband got diagnosed just over 2 years ago but he was ill for 1yr before that. He got told his age was young then and he was in his 40's and because of that lots of good things were on his side.
Every body deals with this illness differently., because it is such an individual disease.So don't…[Read more]

All the best to Peter Min

Don't think about what happens when this stops working, just live and cope day by day. Remember, if Peter is at home having his Revlamid then things are fine. Michael never got to go home to start his.

Please think positive. Fight and live for today and bug— what happens next.

Roz

Hi Keith

This is something else Michael got while on velcade. Even after it and he went on the last treatment he could not stop with these spasms and it is all down to the treatment plus the Myeloma itself.

All the best for the future.

Fight all the way

Roz

Hi Keith

Sorry you have got this problem. Michael had it too. In the end everything went interveniously for Michael. Hope I've spelt it right and you understand.

If it cannot be taken one way they have to find another way. Michael looked battered, so I'm sorry your the same.

Hope things improve for you
Luv Roz

Hi Sara

When my husband went in for his SCT we took, 2 toothbrushes to be on the safe side. lots of creams, radio, photos, mouthwash the one we were advised to bring. But you may find like I did that things you haven't got or run out off are found and given to you.
Always take plenty of night clothes and underwear because these things cannot…[Read more]

Thank you Ellen

I'm not upset I just needed to know it had been recieved by you.
I was weary sending it by the post, because I've known mail not being delivered.

Hope it gets put to good use, on behalf of Michael.

Roz

I got the very same email.
It was in my junk at first, but because I thought it was from here, I put it to my mail box. Then I junked it and deleated it becaue it wasn't from myeloma uk.
All my mail gets checked so no viruses were in my box.

All the best
Roz

Thanks

I still feel guilty and in the way to do that just yet but its a good idea.

Roz

Hi Sean

So sorry Sean to hear about your transplant.

I'm disabled. Michael was the one with mm and has recently died. But enough about that! about you and disabled. You get the disability living allowance form and fill it in or get your nurse, even Dial will come out and help with it.
At the begining Michael refused to fill it in,…[Read more]

Hi Min

Sorry to hear the velcade has stopped working. The revlimid is a much kinder treatment. He'll still take the dex with it. 🙁
Hopefully the revlimid will do wonders, I've known it to.

All the best for you and Stephen
Love Roz

Great news David,

Just remember don't over do things just because you feel fit and well! Remember things take time to heal. But good news any way.
Hope you carry on tis way.
Love Roz

Thanks Bridget and Tom

I'm trying to go one day at a time. Sometimes its worse than others.

Thanks for your thoughts and hugs, and keep on fighting your illness.

Love Roz

Hi Kieth
Thanks for those kind words.

Keep yourself together, and fight round two like you did the first round.

All the best for the future

Roz

Thanks

I'm finding it hard. I still cannot sleep, my carers don't know what to say so I send em home, that means I spend most of my time alone.
I think I've done everything you have to do when you loose a husband/wife/partner. My brotherinlaw has helped me alot where he can. There is lots to do I assure you, lots more than I thought.

Back…[Read more]

Hi Min

You go for it girl. Not quite the same thing but I stopped all my voluntering groups, to spend more time with Michael.:-) So you do what you need to do. Enjoy life together, we used to enjoy sitting in the garden with the different birds.8-)
Slow down live your life instead of all the rushing here there and every where.:-S

All the…[Read more]

Thanks Donna

Sorry for your dad too. Things like this always happen around Christmas and it is a blo— shame.

Roz