Roz replied to the topic Relapse official in the forum General 14 years, 4 months ago
Hi Keith
So sorry your going through this. :'-( I wish you all the best in your next round.
Be thinking about you, so come on lad lets fight it:-)
All the best
Roz
Roz started the topic Yesterday Michaels funeral. in the forum General 14 years, 4 months ago
Hi All
A big thanks for all your hugs, thoughts and messages.
I got through the day, how I still don't really know. I did break in the service especially when I heard our songs. I broke saying the verse too, but I did it.
Sue Mason
Thanks for your thoughts,your understanding of how I feel, having been through it with Gary. I really…[Read more]
Roz replied to the topic Some good news in the forum General 14 years, 4 months ago
Hi Michelle
So glad your mum is still doing well. The Revlimid makes you tired. Michael was always falling asleep. one min he was talking then in the land of nod.
All the best
Roz
Roz replied to the topic Second hurdle starts tomorrow in the forum General 14 years, 4 months ago
Thanks Tom
Just got to get tonight over, then see what tomorrow brings. They have forcast snow again. Michael hated snow, but it snowed when he was dying and looks like its going to snow while they cremate him. Another way to make sure I never forget. Do you think its a hoeman.
I really need the hug tonight
Roz
Roz replied to the topic Second hurdle starts tomorrow in the forum General 14 years, 4 months ago
I'd like to say a big thank you to you all.
Even when I can't sleep I keep coming on here, cos you kinda keep me going.
So I can not imagine I will stop some how. I just need to know that you all keep well, now I've kinda met you. (In a fashion)
If I've anything to tell or add I'll do it.
Love to you all
Roz
Roz replied to the topic Idiot on Dex?? in the forum Off topic 14 years, 4 months ago
Hi Gill
I don't know what it is about this illness, but Michael wanted another dog. He talked none stop about it, even when he was confused he'd been taking our dog Benji out, so he said any way. Benji has been dead for around 10 years.
I put my foot down and said no due to both our conditions, but part of me wish I'd given this bit of…[Read more]
Roz replied to the topic Anaemia and Blood Transfusion in the forum Treatment 14 years, 4 months ago
Hi Ron
Michael my husband had lots of blood transfusions. Anaemia was a part of his myeloma.
You will see that once your wife has had the blood, she will start to improve.
I have not known any drawbaks from transfusions, the opposite in fact. Your wife, or your self will know when this is needed again in time. With Michael I always knew…[Read more]
Roz replied to the topic Second hurdle starts tomorrow in the forum General 14 years, 4 months ago
Thanks All
The service is Friday 7th January at 12.40pm.
I'll try to stay in contact, as long as I'm not intruding.
Now Michael has passed on I don't know where I belong any more.
I'll raise money for you as often as I can, but all my contacts stopped when Michael got worse. Its like finding my life again, without Michael and it is very…[Read more]
Roz replied to the topic Second hurdle starts tomorrow in the forum General 14 years, 4 months ago
Thanks Gill
It's lovely. Enclosed is a verse I'm hoping to read at Michael's cremation. Got to get rid of sore throat first.
Roz
Roz replied to the topic Second hurdle starts tomorrow in the forum General 14 years, 4 months ago
Thanks All
I'm taking each day as it comes. Still walking in a daze, but trying to carry on.
Michael is now back in Doncaster.
Cremation at end of week, then stage 3 starts sorting papers and stuff out.
Thanks for keeping me sane
Roz
Roz replied to the topic Dexatude in the forum Side-effects 14 years, 4 months ago
Hi Gill
I hope you keep a calmer placid Stephen for quite a while. I know what they did to Michae, and how things were always my fault. The nurses always say, not everyone who takes it suffers this way but nearly everyone on this site takes it out on their partners when on Dex I believe.
Roz
Roz replied to the topic Revlimid Maintenance Therapy in the forum Treatment 14 years, 4 months ago
Hi
This was just a sml side effect that Michael got, but his rash was bad. It started on his neck then literally went all over his body. Michaels rash itched like mad when water touched it. So it was very hard for him to get washed. He never got this rash until the 2nd cycle, it took over a week to go. It started going when he had the 7 day…[Read more]
Roz started the topic Second hurdle starts tomorrow. in the forum General 14 years, 4 months ago
Hi All
Just wanted to say thank you. I'm still walking in a dream. Rachael my daughter, Lauren grand daughter and myself still have not broken and let it out yet.
Tomorrow is the start of hurdle 2. Funeral directors come to house. Then I go to hospital to get all paper work.
I've not got much more to say other than I'll do my best to get…[Read more]
Roz replied to the topic Revlimid Maintenance Therapy in the forum Treatment 14 years, 4 months ago
Hi Sue
Your husband may not get any other side effects than severe tiredness, but my husband did. It was because of the side effects that he had to get taken off revlimid. My husband has now died and the things I saw too severe so please remember MM is a disease that everyone reacts differently too, so what is good for your husband is not…[Read more]
Roz replied to the topic Revlimid Maintenance Therapy in the forum Treatment 14 years, 4 months ago
Hi All
Michael had a SCT which only lasted 3months. His next course of treatment was Velcade which also lasted 3months. Then he was put on [u][b]Revlimid[/b][/u] this was for always until mm came back.
There was side effects from [u][b]this drug[/b][/u]
Even though we were told they would be less severe they still were pretty bad. It…[Read more]
Roz started the topic Thank you. in the forum General 14 years, 4 months ago
Hi All
Still in a whirl and a daze but keep coming on here.
I've changed my pc picture to the one I've changed here and now the resolution is wrong, It will have to be daughter to the rescue.
Right first hurdle done, next hurdle is waiting for Wednesday when everything opens again.
I'm hoping to get donations instead of flowers, if…[Read more]
Roz started the topic Michael passed away at 1.30am today. in the forum General 14 years, 4 months ago
Thanks for being there 4 me. Just letting you know I got the phonecall I didn't want at 2am this morn.
Too much in a whirl to say anything else
Roz
Roz replied to the topic Michael is dying in the forum General 14 years, 4 months ago
Thanks Sue
I've seen alsorts, spoke to him days and nights. He last spoke last Saturday when he wanted a kiss.
Roz
Roz started the topic Had to come home after 7days and nights. in the forum General 14 years, 4 months ago
Hi All
I've had quite a bit to drink and in agony before I came on site.
Nothing went to plan!! I got a phone call last Thursday that Michael was in agony, scared,distressed and lots more. He believed I was having an affair because I wasn't there. So since that day till 8.30pm last night. I was in his hospital room, in and out of my chair and…[Read more]
Roz replied to the topic Roz in the forum General 14 years, 4 months ago
Thanks all