[RozParticipant]

Thanks
I know your right and I'm glad he is talking to someone. I just wish he would talk to me. Even when he is bad he calms down when I go but he doesn't talk things out and then he says I don't talk but it does take two.

I hope this rambling period doesn't last long. Not going today so hope he'll be ok.
Going to phone his nurse tomorrow to get this meeting arranged.

Love to you all
Roz

[RozParticipant]

Thanks All

When I went to see him last Thursday a lady vicar came in, told me she had been visiting Michael for ages. Apologised to him because she had even been to the other hospital when he went but never got to speak to him. She then left. Said she would see him when I wasn't there.
I never knew about here, she had never been there before when I was there and I do visit alot. So I just feel he can talk to her but not me and she never asked how I was doing. I'm kinda on my own through this when we should be together.

Just got back from visiting today. He is very poorly and confused and if they don't watch him a accident will happen.

Love Roz

[RozParticipant]

Hi Lynn

I'll talk now last night was too late and a glass too many wines!:-D

Sorry to hear about John and hope he starts to pick up real soon. You too should rest when possible. I don't sleep much but a lay down b4 I go aids my back abit, especially 6hr visists.

We found out the other day that most of Michaels infections all stem from his intermediate infection in his arm. So now his consultant, nurse, Michael and I have got to discuss how to treat his myeloma and arm together, otherwise he'll never get home. The revlimid and dex is helping his myeloma improve but these infections don't help his life.

Any way all the best to you both. Keep smiling:-) I try to.

Love to you both
Roz xxx

[RozParticipant]

Hello Lynn

Sorry for not recognising you but I've been in a mess with Michael.

I doubt very much he will be home for christmas after what happened yesterday. Still got to have the meeting with his consultant.

I hope both you and John are ok, and he starts recovering well.

Talk to you more later

Luv Roz

[RozParticipant]

Thank you

It's wine tonight. Darn't go to bed or rest even though another full day tomorrow. My mind is working overtime. So maybe a drink of wine will relax me.

I'll see him tomorrow and see how he his and hope and pray his ramblings have stopped.

Can I ask any of you, when your in hospital having treatment have you ever had the vicar, or parson or what ever visit you? I'll explain when I've had some answers.

Thanks again
Love Roz xx

[RozParticipant]

Thanks Bridget

Everyone keeps telling me I'm strong but I'm loosing it day by day. I spent most of yesterday crying.

Anyway see what happens, he's gone back to haematology department now.

Thanks
Roz

[RozParticipant]

Hi Lynn

My husband has mm, he is in hospital and has been for 3 months now. I'm disabled with carers of my own. I live in Doncaster and Michael is in Sheffield and I get to him between 4 and 5 days a week. I cannot drive, others have to drive me. I have alot of disabilities which I won't name because over time you learn to just carry on!

Lynn just take every day as it comes. One day at a time. Do not look for the future, let the future take care of its self.

Yes you do have bad days, I blame myself for Michael being in hospital, but if I hadn't he would be dead now.

Al[b]so Lynn learn to rest yourself[/b] Then some good times will return.

All the best to you both
Roz

[RozParticipant]

Hi All

Here is the up to date….[b]Nothing we don't all ready know[/b]:-S

[b]Another consultant did the rounds so still got to talk to Michael's.
No way can he come home because if he did he would be back in like a shot 10 times worse where he may not survive![/b]:'-(

We also got told his arm is the main source of infections. Then he gets others so it's going in his blood stream.:-(

Michael, myself his consultant and his nurse have got to meet up very soon and decide how they can treat his myeloma and his arm!! So folks nothing changes for us only Michael gets worse.:-( :'-(
Cheers All
Roz

[RozParticipant]

Welcome Kathleen

The site for the non normal is here. Its great though to cheer you up.

Roz

[RozParticipant]

Thanks everyone

Tom your hugs are great. As you can see by the time I'm not doing alot of resting. I'm just thinking about another long day ahead, where I may or may not get some anawers.
My carer starts at 7.30am and I leave at 9am but still I cannot sleep. Deep inside I know everyone is right but convincing Michael will be hard. It's going to be a hard emotional day. [b]Yes I'm scared![/b]

keep you up to date
Luv to you all
Roz:-/

[RozParticipant]

Good luck, keep smiling,
All the best
Luv Roz

[RozParticipant]

Thanks All
Michaels nurse phoned again last night. She tells me I'm going in the right direction, trying to explain to Michael that when we speak to the consultant he will more than likely be refused to come home.
Do you know? I know it is the right answer but when I'm with him and he tells me to get him home, I always question it!
Michael doesn't blame me, I just casualy told him his sister did; cos she has a habit of causing trouble; and she is seeing him today so I needed to get in first.
Andrea his nurse says I don't need this kind of stress so I'm not going today, his sisters can have their weekly visit (if that) This is to them:-P

Cheers everyone
Roz>:-)

[RozParticipant]

Thanks everyone you help keep me sane!
Michael is talking more reality wise today! (Think you all will understand that) He slept through just about all of my visiting time, but at least I know he has had his bloods.
I'll try and keep going. Been told I'm strong but I'm finding it hard now every day. One of his sisters blames me. She thinks I'm torchering him with this treatment, so thats hard to bear.

Speak to you all soon
Roz

[RozParticipant]

Thanks Tom AND Min

Michaels nurse phoned again last night. She's keeping an eye on me. Having listened to her I don't think Michael will be coming home. His Myeloma is improving but his infection tolerance is not!

I've just got to work out that I'm not to blame for putting him in hospital, Is it better that he is still here but we are apart or for him to come home and not survive.

There is no answer to work out really I want Michael to be alive.[b]BUT[/b] Watching him go through all this is hard and listening and convincing Michael is even harder.

Thanks for hugs
Roz

[RozParticipant]

Thank you

Never got to speak to consultant. Michael never got his blood, its down below 7. I don't know what's happening any more till I can talk to consultant just know he's got a nasty infection in line, his chest may be infected and his arm is setting him back. Plus he needs his blood.

Keep holding on but we are both finding it hard now.

Roz

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