Hi Lorna..

My partner Melvin was diagnosed with a Solitary Plasmacytoma on 15th December 2010, so our journey started nearly two years ago. Reflecting back to those days, I felt scared and unsure of what it all meant, I remember that. It was almost like I went through some kind of grieving stage??! Things have really progressed for Melvin now…[Read more]

Thank you for your message Jean. Guilt is a very powerful emotion isn't it? I think it can be a visitor in most situations. Unfortunately, I over think absolutely everything too and scrutinize myself..'have I done enough?' etc..

We have been referred to Counselling, although the last two appointments were cancelled due to the Counselor being…[Read more]

Hiya – it seems to be all go for you at the moment. Fingers crossed that they soon find you a match. Best wishes Kerry and Melvin x

Hello Angelina,

I'm sorry that we meet this way. You do seem to have a lot to deal with at the moment and i appreciate what a very anxious time this is for you.

You say that you have had the bone marrow biopsy – have you had the results now? As far as I am aware, this does give an accurate diagnosis of Myeloma. It is my 39 year old partner…[Read more]

Hi Sarah Jane

So sorry to hear your news. I will be thinking of you and your family and wish you all the very best with your treatment. I am sure there will be lots of support, help and advice here for you. I am still under 'watch and wait' and am attending the Cardiff info day with my husband and son soon.

Take care

Andrea
xx

Thank you all so so much for replying to me. You all seem such caring people and I look forward to getting to know each and everyone of you. I'm off to bed in a min, it's been a long day in 'my' world today and I'm so tired. We are having a Care Alert Monitor installed tomorrow..and it's 'my birthday' so need my beauty sleep – 37 years old…[Read more]

Thank you all so so much for replying to me. You all seem such caring people and I look forward to getting to know each and everyone of you. I'm off to bed in a min, it's been a long day in 'my' world today and I'm so tired. We are having a Care Alert Monitor installed tomorrow..and it's 'my birthday' so need my beauty sleep – 37 years old…[Read more]

Hi Sarah Jane

It seems like we are pretty much at the same stage so would be lovely to keep in contact. I hope your MRI scan is clear and that you have a long time smouldering. I try not to get stressed and put it to the back of my mind as there is absolutely nothing I can about it! Easier said than done!

Take care
Andrea xx

Yes I agree! It is all very complicated but I think I know quite a lot now and know which scary websites to avoid!

Hi All

I was quite surprised today at clinic that my pp has fallen from 37.1 to 34.5. Is it common to fluctuate like this? The downside was that my hb is falling each time and is now 10.3. I am still being kept on 4 weekly follow up.

Andrea x

Hi Jennifer

I understand completely how you feel. I am also 51 and just been diagnosed with SMM and will have 4 weekly blood tests to monitor the paraprotein. Mine is around 37 now but luckily I have no symptoms yet. If you are unsure about whether the monotoring is enough I would ask the consultant or nurse at the clinic.

I wish you both…[Read more]

Hi Jenny

Thank you for your message and kind invitation. I would love to come to one of your meetings soon. It would be great to meet up with local people.

Many thanks
Andrea

Hi Ali

Thank you for your lovely message. It's good there are so many people here to share experiences.

love
Andea xx

Hi Carol

Nice to meet you too. Thank you for your kind message. This whole journey is going to be alot easier with other people to talk to here.

With best wishes
Andrea

Hi Vicki

Thank you for your kind message and good luck to you and Colin with the stem cell transplant.

Best wishes
Andrea x