Hi Mike

They have just started talking to eachothe,the consultant in Southampton and the consultant at St Mary's on the Island. They are thinking about Revlamid instead of Thalidomide. There is an option of 3 or 5 week cycles. They are not sure why Charlie collapsed twice and are checking his heart. They feel the Thalidomide may have caused…[Read more]

Hi Tom.

Trying to become incredibly positive but it is not working at the moment.

Charlie came home from hospital for one day, the next morning, he was having chest pains and I rushed him back in. They say the Thalidimide caused the PE but now he has something wrong with his pleuritic sacs. They have stopped the Thalidimide and are just…[Read more]

Hi Mike
Thanks so much for replying. Charlie came home from hospital for one day, the next morning, he was having chest pains and I rushed him back in. They say the Thalidimide caused the PE but now he has something wrong with his pleuritic sacs. They have stopped the Thalidimide and are just giving him pain killers for the chest. Don't know…[Read more]

Hi Mike

They have decided not to give him Warfarin now but increase the Clexane dose. Is this good. Will the PE disperse as he is still having pains in the back? It is so dreadful not knowing what is best.
Love Mary:-S

Thanks Mike
We have learnt more from you than the hospital. The cardiac technician has just put him on a 24 hour monitor. See what happens next. Thanks for informing us, it is good to know what is happening. He knew they were giving him injections & tablets but not what they were.

Love Mary:-)

Hi Tom

Where do you get your positivity from? Can you pass some over?
They said today at the hospital that it was a pulmonary embolism and have put him on Warfarin for the rest of his life. I don't know what that does for the rest of it. Just keeping my fingers crossed and deep breathing.
So wish we were post SCT – how does everyone…[Read more]

HI Phil

Can't wait for post SCT. Charlie was re-roofing the shed the night before he collapsed, maybe he was overdoing it. Thanks for the hope Phil.

Fingers crossed.

Love Mary

Thanks Eve. The inner strength seems to be evading me at the moment. I feel that I am going to burst. Maybe I shall try a pill tonight and see what happens. The doctor gave me 5 boxes and like you I am so not into pills but this is a new experience isn't it?
As Tom says, Upwards & Onwards – hopefully.

Love Mary

Thanks Jean

What would we do without you all? It is so good to chat to everyone that understands.
Deep breath for another day of hospital visiting. :-0

Love Mary x

This site is so cool isn't it? I have been feeling dreadful over the past couple of days. My daughter said to me, go on the Myeloma site, it is there to help and it does. Eve, you must be strong, I feel like a wreck at the moment but hopefully I can be like you, positive and suportive. You make me feel like there is hope at the end of the…[Read more]

Wonderful Michele

Wish we were at the same stage as you. Keep Well.
Shall let you know tomorrow.
Love Mary

Hi Michele

He is still in hospital in the Medical Investigation Unit. Really fed up. He was fine until Friday morning. I don't know if they are in contact with Southampton, I have given them all the details but have not seen a doctor yet. When they were banging his chest, I was frightened they were going to break something. His chest is a…[Read more]

Hi

I am Mary – Charlie's wife. Charlie was rushed into hospital in the Isle of Wight on Friday. He got up in the morning and collapsed. He collapsed again in A & E and they all rushed to resucitate him. It was frightening. He is a lot better now but as it is the weekend, we still have no idea why this happened. They have stopped all his…[Read more]

Thanks so much Michelle. Feeling a bit down at the moment but you have made me feel more positive, just got to get through this and accept it. Looking forward to when the SCT is over and hopefully be normal again.

Dancing with Myeloma.

Charlie

Hi Michelle

Thanks so much. Where is my inbox? Are the messages in with all the others.

Best Wishes
Charlie

Hi Michelle

How long after SCT did you feel better? Was it dreadful?
So glad you are feeling so much better.

Charlie

Hi Vicki & Colin

Let us know when the SCT dates are – that is the bit I am dreading, and recovery. Hope it goes well and maybe fun afterwards!!

Keep Dancing.
Charlie

Hi Bill

It must me trauma for you and your family at 41. So young. Let's hope we can go through the trials well together. Is your wife/partner OK? I feel sometimes it is worse for them than us.

As Tom says – upwards and onwards and as Carol says – Dance!!!

Charlie

Hi Jean

Thanks, natural yogurt sounds cool. Poor Frank, seems to have had it worse than me. Drives me mad but seems to have subsided now.

Onwards, upwards and Dance!!

Charlie

Hi Carol

So glad your hair is growing, must be great. I shall try applying for DLA and see what happens. I love your dancing idea – Dancing with Myeloma – cool.

Onwards, upwards and dance.

Charlie