Hi Fiona
sorry for the delay in replying…. but anyway….

it’s good to know Kevin is keeping up his knowledge base with MM. We saw him for probably over two years every time we went to the Marsden and got to know and like him. He was always the one that attended the worldwide conferences and networked within the MM community and so was always…[Read more]

Hi Debi
there is plenty of parking space at the Marsden in Sutton, although it’s not exactly cheap. If however your appointment is in central London then parking is almost non existent unless you have a blue badge. You can always take a chance, we did and were lucky; but I wouldn’t recommend it.
regards
Stuart

Please given Kevin our best wishes ( from the couple from France) as we always made a point of seeing him when we went to the Marsden. We had every confidence in him, and I’m sure he will do a good job of looking after your husband. Add to that the fact that he will be working in conjunction with the Marsden will mean he will get the very best…[Read more]

Hi Fiona
my wife is a patient at the Marsden and has been on Revlimid now for four and a half years.
If one of your team in Brighton is Dr Kevin Boyd then you are in good hands. Kevin was part of the prof’s team at the Marsden and so has a lot of experience of MM.

Good luck

Stuart

Hi David
I don't know if you're going by air or sea but I could offer the following advice.
My wife Jules and I travel to and from France quite often, and I have certainly travelled more than once with less than 6 months left on my passport. Our experience is that the French immigration people (certainly at Dover) are very relaxed about…[Read more]

Hi Sarah Jane
I wrote a daily blog for my wife's treatment, so that all her friends in France could see how she was getting on, and reduce the need for lots of phone calls. If you want to take a look at it the address is: http://julesatthemarsden.blogspot.fr
Go to November 2008 for the cell collection and Jan 2009 for the SCT.
It's only one…[Read more]

Hi Vicki and Colin
my memory of side effects following her SCT was principally her tiredness, but I think they appear in more detail in the blog follwing on from Jan 09. She did relapse, but over two years ago commenced Rev and Dex, which after 4 months her PP level was undetectable, and there it has remained for a shade over two years now. She…[Read more]

Hi Vicki and Colin
My wife had her SCT in 2009 and I started a blog for her, mainly as a means of keeping her friends in France updated. If you want to take a look its at http://julesatthemarsden.blogspot.com and go to January 2009 for her daily progress. I hope it helps put your minds at ease…
best wishes
Stuart

Hi Dai
sounds very much like you are coping fine with Revlimid. My wifes experience was quite similar, and in fact looking back we realise the worst part was the dex. In her case it took five months to reduce her pp level to "undetectable". She is now on month twenty four; now at a reduced dose Rev, and aside from needing to monitor blood counts…[Read more]

Hi Penny
don't know if this will help, but here is link to a blog we did for my wife. We did it originally as a way of keeping all her friends informed about her progress. Go to January 2009 for her day by day SCT experience.
http://julesatthemarsden.blogspot.com
Best Wishes
Stuart

Hi Vic
my wife was diagnosed in July 2008, and at the time of diagnosis the damage to her vertebra was so significant she was unable to support herself or walk. She underwent a vertobroplasty to "rebuild" her collapsed vertebra (under local anasthetic) and did not find the operation caused her more than a little discomfort. I believe that at that…[Read more]

Hi Ed
Im a carer to my wife who was diagnosed in 2008 at the age of 53, and I'll give you my spin on life with MM. It may be helpful if I say that at dignosis my wife was in hospital and unable to walk, it was obviously serious but we didnt know how serious. When a lady doctor came to give us the dignosis she simply said "you have MM, make no…[Read more]

I can certainly confirm from personal experience that finding out what entitlements there may be for MM patients is a real problem! Add to that the completion of usually enormous application forms will surely make the whole exercise too daunting for some. In addition even if you are prepared to findout,complete the form, you will probably manage…[Read more]

Hi Christine
my wife was diagnosed in July 2008, and at the time of diagnosis she had several collapsed vertebra, to the extent that she was unable to walk or stand up. In her case the hospital concerned performed a vertebroplasty on her collapsed vertebra and over the following couple of months she became completely mobile again. She too at that…[Read more]

Just waanted to let you know about our positive result to treatment with RCD. My wife started on RCD in April last year, and its true that the symptoms she suffered initially were very similar to most peoples. Fatigue,mood swings…. you all know the score. However after six months her pp level had reduced to 0 ( a level never achieved after her…[Read more]