<p style=”text-align: center;”>AHi Richard, I live on the Isle of Wight so I have weekly visits over here and then go to Southampton to see the specalist, so far I have seen him twice and due to go again next Tueaday. The island consultant said it could be 5-6 cycles but the chap in Southampton has indicated that it will be more, at least 7. I think that the lower the paraproteins are the better- currently at 14 started at 60. What is interesting is the difference from one hospital to another. I have a lot more confidence in the Southampton hospital and what I am being told. The three things I have really looked at are:</p>
1, make sure you get a good consultant, when I was told back in June the consultant on the Island was telling me that everything was alright and I would collect my pension and probably die from something else so to be honest I took it at face value and for three months gave it no consideration. Then when I saw the Southampton consultant and it was a reality check for us.
2, infections, from what I understand this is the biggest issue with what we have. I need to look into this more.
3, understanding of Myeloma, hence I will start attending group meetings, and doing more research but only from certain websites, I tried Myeloma Facebook but had to come off, for me it did not help.
Rebeeca is great on this site and I only signed up a week ago but always looked. My wife loves her attitude and advise.
By the way, my wife is also a full time teacher in the science dept teaching GCSE and A level so I have an understanding of how differcult it must be.
Hope this helps
Adrian
