[adriwest1Participant]

You have to believe me that it does get easier- I think you begin to get used to it, if he’s like me you just want to be normal again and have the confidence to do what you want to without people thinking/looking at you differently. This does take time and guts to get on with life at his stage. I got very low at times but these days do pass and a lot of it is how you feel. My wife as great but she also knew when I needed a kick up the backside.

Adrian

[adriwest1Participant]

It a long slog- I was diagnosed in June 2016 and only just had my SCT  the phrases ‘everybody is different’ and ‘your on a journey’ didn’t really help much. I think you just have to take it as is comes and focus on what’s next!! and try not to let your mind run away with itself.

Adrian.

[adriwest1Participant]

Hi Sabs,  Wish I could help on this one but I simply  don’t know the answer. Did he have an MRI scan when he was first diagnosed? From what I undwrstand if the M spike has been reduced (which it clearly has) then this should stop further bone damage.

Regards

Adrian.

 

[adriwest1Participant]

Hi Sabs they usually put them back 24 hrs after chemo, I know what you mean about not making sense!! but I think the chemo is so strong it kills nearly all your cells good/bad and the stem then graft behind this, side effects really kicked on around day 7 for me. After the <span style=”color: rgba(0, 0, 0, 0.870588); font-family: Roboto-Regular, HelveticaNeue, Arial, sans-serif; line-height: 20px; -webkit-tap-highlight-color: rgba(0, 0, 0, 0);”>Melphalan </span><span style=”line-height: 1.5;”>initial chemo they put you on a drip for quite a while to help flush you out. I went though 14 lollies while having the chemo and swallowed the lollies in bits so some whole bits went down my throat, I had no problems at all with mouth sores- might have been lucky but felt going it was better than not. Hope this makes sense, Adrian.</span>

[adriwest1Participant]

Hi Sabs, I am 48 years old. I went in on Friday 22nd Sept at 6pm, on Saturday I had the <span style=”color: rgba(0, 0, 0, 0.870588); font-family: Roboto-Regular, HelveticaNeue, Arial, sans-serif; line-height: 20px; -webkit-tap-highlight-color: rgba(0, 0, 0, 0);”>Melphalan which   took about one hour, because of the weekend I had to wait until Monday to return my stem cells back- again this only took around one hour. Got out this Tuesday so a total of around 18days which I think is around the normal range. He will be on drips quite a bit of the time and you are constantly monitored night/day. I felt very safe but it is a hard slog. If you get the green light let me know as there are two or three things I would do which would of helped. </span>

Any questions please ask away, that’s what this site is all about.

adrian.

[adriwest1Participant]

Thanks Greg, It truly is an experience! I can only tip my hat to you with what you went though.

Plan to lie low for a couple of weeks and potter around.

So grateful for this site and Myeloma UK as without them I’m not sure I would have coped very well. Next I plan to raise more money (around £1200) since March. and getting friends and family to get their Christmas cards from Myeloma UK.    As the hope for the future lies in science in my opinion.

hope all’s well with you

Adrian.

[adriwest1Participant]

Hi, I am currently in Southampton Gen and they are tops- day 4 on my SCT. 

Dr J is in my option is the best!

 

[adriwest1Participant]

Just got in for SCT, two doors down from you Pete.

[adriwest1Participant]

Ok thanks for the info Pete, I think I’m going in tomorrow but will need to wait until the morning to be sure. Is this your 1st day in? Thanks and keep in touch adrian.

 

[adriwest1Participant]

• Hi Pete good to hear from you, think your ahead of me- let me know if anything happens as I will.

[adriwest1Participant]

Thanks Susie I guess the temptation  is to want to go home asap, I already think 14 days and home would be good- this really does play with your mind.

Take care

Adrian

[adriwest1Participant]

Hi Susie, going to have my SCT in Southampton. I will keep you posted and any tips you have would really be appreciated.

Hope you continue to improve on a daily basis.

Adrian.

[adriwest1Participant]

Hi Susie- well I did it, I never thought I would get this far with all the treatment. I’m now waiting on a bed for the main event. How are you feeling now?

Thankyou for asking by the way it means a lot

adrian

[adriwest1Participant]

Thank you hoth for your kind words, I needed that. Will need your advise again if ok as stem cell looms as soon as the line is on, they said its just a bed when it comes up- this just doesn’t feel real sometimes. Thank you again!!

adrian.

[adriwest1Participant]

Thanks Greg, I othen have a look on this site as I don’t use facebook for advice- don’t want to sound like a moaner but I am finding this so hard. I hate blood/ needles and the constant trips to the hospital.

We are really lucky to have this site to express our feelings as its feels a lonely place sometimes as only we know how we feel, I find friends/family do help but is it me? I feel they don’t really get it!

Thanks Greg- I often read your posts and you are a great help as you have done it and got the t-shirt.

Adrian.

 

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