Thinking of you Mike.  My specialist is now not sure if its smouldering myeloma or lymphoplasmasitic lymphoma.  Para protein still at 23 but luckily no other symptoms

Hope all goes well

Hi Tony,

Haven’t been on the website for a while but have a mixed diagnosis now as they can’t decide whether it is smouldering myeloma or another type of  blood cancer.  I have been seeing a counsellor and this has really helped me to get my head around the diagnosis and to start and plan things for the future.  I am lucky enough to have a re…[Read more]

great news that must be a relief.  Definitely go on holiday with a more peaceful mind enjoy your self.

ali

Thanks so much for you post Carol that really does help me to try and put it into perspective.  Let’s hope  there can be a cure in our lifetime.  Good luck a lovely part of the world.  May I ask a personal question? How were you at diagnosis as I am thinking about retirement or carrying on working.

REgards

Ali

Dear Tony,

I joined the forum today – I was diagnosed on March 20th with smouldering myeloma after 2 months of blood tests and the bone marrow and bone biopsy.  I too am feeling a whole gamete of emotions as you can probably tell from the time of this post.  I have carried on with my normal life as a teacher but have found returning from the E…[Read more]

Hi Mike,

thanks for your post I will look forward to reading your retrospective and will keep in contact

Ali

Hi Mike,

Was diagnosed with smouldering on March 20th and am still coming to terms with what this means.  You seem to have lots of knowledge on the subject and will have to admit that I am somewhat overwhelmed with all the figures.  Decided to join the forum today as am feeling uneasy having had a CT scan last week.  My paraprotein is cu…[Read more]