[ali7Participant]

Thinking of you Mike.  My specialist is now not sure if its smouldering myeloma or lymphoplasmasitic lymphoma.  Para protein still at 23 but luckily no other symptoms

Hope all goes well

 

[ali7Participant]

Hi Tony,

Haven’t been on the website for a while but have a mixed diagnosis now as they can’t decide whether it is smouldering myeloma or another type of  blood cancer.  I have been seeing a counsellor and this has really helped me to get my head around the diagnosis and to start and plan things for the future.  I am lucky enough to have a really supportive boss who is easy to approach and my family have been great.

Its really important to talk and not let things bottle up or get out of proportion.

Good luck and hope your future appointments go well

Ali

[ali7Participant]

great news that must be a relief.  Definitely go on holiday with a more peaceful mind enjoy your self.

ali

 

[ali7Participant]

Thanks so much for you post Carol that really does help me to try and put it into perspective.  Let’s hope  there can be a cure in our lifetime.  Good luck a lovely part of the world.  May I ask a personal question? How were you at diagnosis as I am thinking about retirement or carrying on working.

REgards

Ali

[ali7Participant]

Dear Tony,

I joined the forum today – I was diagnosed on March 20th with smouldering myeloma after 2 months of blood tests and the bone marrow and bone biopsy.  I too am feeling a whole gamete of emotions as you can probably tell from the time of this post.  I have carried on with my normal life as a teacher but have found returning from the Easter holidays this week very hard.  I think that talking about it and keeping each other positive is the best way forward.  As Mike has suggested finding out is good but I am finding the figures mind boggling as I look at the paperwork I have.  It is scary but also this forum does help you to know that there are others going through this.

I made the decision today to get some professional counselling so that I can off load my thoughts to a third party.  I don’t know if this will help but will let you know if it does.  I am lucky enough to have older children and I have been very open with them but its hard telling loved ones news like this.

Try to keep positive and all the best with the up and coming tests

Ali

[ali7Participant]

Hi Mike,

thanks for your post I will look forward to reading your retrospective and will keep in contact

Ali

[ali7Participant]

Hi Mike,

Was diagnosed with smouldering on March 20th and am still coming to terms with what this means.  You seem to have lots of knowledge on the subject and will have to admit that I am somewhat overwhelmed with all the figures.  Decided to join the forum today as am feeling uneasy having had a CT scan last week.  My paraprotein is currently 23 but I can’t remember the other figures as am at work at the moment.  It would be great to keep in the loop and share my feelings with others.  The roller coaster is definitely the emotional analogy to go for!

Regards

Ali

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