ozzy replied to the topic Three little words…… in the forum General 11 years, 9 months ago
Lovely news congratulations.
Ozzy
ozzy replied to the topic just been diagnoised in the forum Newcomers 11 years, 9 months ago
Hiya
I find it useful when I am going out where there are lots of people or especially when I fly I spray cold defense spray up my nose(I buy Boots make but there is probably other makes out there). It seems to work for me and on the one time I forgot I caught a cold so maybe its worth trying.
Good health all
Ozzy
ozzy replied to the topic Sam has relapsed. in the forum General 11 years, 9 months ago
Hiya
So sorry to hear about your relapse, my sct lasted only 21 months. I am now on Velcade & Dex.
Hope your treatment works well for you.
Best wishes
Ozzy
ozzy replied to the topic Peter has relapsed / info needed on Velcade in the forum General 11 years, 9 months ago
Hiya Trish & Peter
I also relapsed in January, my sct lasted nearly 2 years. I am now on Velcade and dex. I had 2 injections x 2 weeks and am now on a 1 week break. I had a high temp 38.7 on the 2nd injection and was admitted to hospital. I have had bad constipation had to take meds and then had the reverse last weekend with added sickness(losing…[Read more]
ozzy replied to the topic new arrival in the forum Off topic 11 years, 9 months ago
Congratulations to all you new grandparents. I hope one day I will join your happy gang!!
Ozzy
ozzy replied to the topic Croaky/husky voice on Dex in the forum Side-effects 11 years, 9 months ago
Hiya all
Thankyou all for replying. I had the dex two weeks ago and my voice still hasn't come back to normal.I restart the damn stuff on Monday again. At least Gayle will be happy as I wont be able to speak to moan!!!
Good health
Ozzy
ozzy replied to the topic Here We Go Again in the forum Treatment 11 years, 9 months ago
Hi Keith
You really are going through it but I'm sure the docs will sort you out.I tollerated CDT far better and with good results so hoping will do the same for you.
Ozzy
ozzy replied to the topic So far, so… in the forum Treatment 11 years, 9 months ago
Hi Dai
So glad things are looking up for you, you've had quite a time of it.
Best wishes
Ozzy
ozzy replied to the topic Relapsing in the forum General 11 years, 9 months ago
Hiya all
So glad your trip to India is still on. Thanks to you all for your good wishes. I have had four velcade's in the past two weeks and I am finding it really hard. I had an overnight stay in a& e last Sunday(no beds slept on a trolley!!!!) as temp 38.7. Had another one yesterday and temp rising again. I have been sick and have terrible…[Read more]
ozzy started the topic Croaky/husky voice on Dex. in the forum Side-effects 11 years, 10 months ago
Hiya all
Has anyone else suffered with their voice when on Dex? Mines croaky husky and nearly gone. The same thing happened before when I was on CDT.
Thanks all
Ozzy
ozzy replied to the topic LUMBAR KYPHOPLASTY in the forum General 11 years, 10 months ago
Dear Jacqui
So sorry to hear this news – this awful disease takes no prisoners,Please be strong and take care of yourself.You are in our thoughts.
Best wishes
Ozzy & gayle
ozzy replied to the topic Velcade in the forum Treatment 11 years, 10 months ago
Hiya Maureen
I have started Velade and Dex today but like you Dai the old way with the canula my hospital doesnt do it yet with the injection in the stomach/side. I had 6 courses of CDT originally took poorly on the 2nd course and had pneumonia so I must admit to be a bit nervy this time round. I have a cold and cough already so that worries me.…[Read more]
ozzy replied to the topic Relapsing in the forum General 11 years, 10 months ago
Hiya Wendy
That's my way of thinking too with the second sct and I dont know whether I really want to go through another.I feel like you fed up that my transplant didnt last long and what the future holds for me. I was hoping to go to Canada this year but there will be no way now. Your holiday is in March so you should be able to make it. When I…[Read more]
ozzy replied to the topic Relapsing in the forum General 11 years, 10 months ago
Hiya Ange
I tried to reply to your email Ange but it came back. We will also try to attend in March -health permitting. Well I have relapsed and will be starting Velcade tomorrow. I have picked up a cold and have a cough so I dont know what they will do and I'm not sure how they give this Velcade.Hope the snow is not too bad for your farm.
Hi…[Read more]
SarahJane replied to the topic Question about blood test results in the forum Treatment 11 years, 10 months ago
Thank you all for all your tips on blood results. Consultant was more than happy to give me past results and as her printer wasn't linked up I sat there and scribbled them down, still some blanks still to fill next time but a good start.
Start of Cycle 2. 3. 4.
Haem: 12.9 13.1. 12.7
WBC: 4.1 3.6 2.7
Plate: 215 124…[Read more]
ozzy replied to the topic Relapsing in the forum General 11 years, 10 months ago
Hiya
I too are in the same position my pp have shot up to 48. I had sct in January 2011 and it only lasted 21 months. I have had another BM biopsy last wed and full skeleton xrays. I am seeing the Prof at the hospital tomorrow and last week my consultant mentioned starting Velcade and dex. I will find out my fate tomorrow. What a start to the new…[Read more]
SarahJane replied to the topic Question about blood test results in the forum Treatment 11 years, 10 months ago
Thanks Mavis. I always get pp a month later at next appointment, bit of a pain, tomorrow I finish Cycle 3, but get pp results for Cycle 2 at appointment.
Will see if consultant is happy to give me a printout 🙂
SarahJane replied to the topic Question about blood test results in the forum Treatment 11 years, 10 months ago
Chris, Brilliant, have it somewhere, or will download it,
Jean, no I don't have it but will call them tomorrow, always useful
Peter, I always see it on her computer screen, with numbers in red (guess these are the numbers misbehaving!), will see if she'll print it out for me 🙂
Thank you
keznmel replied to the topic Just got a diagnosis in the forum Newcomers 11 years, 10 months ago
Hiya there..
I am really sorry to hear of your diagnosis but please don't lose faith. My name is Kerry, it's my partner Melv that has Myeloma. He is 39 years old.
Myeloma seems so complicated doesn't it? So hard to get your head around but there is so many treatment options as I'm sure that you have found today.
How did your appointment…[Read more]
SarahJane started the topic Question about blood test results. in the forum Treatment 11 years, 10 months ago
I am due to see my consultant on friday (plus get another carrier bag of pills for Cycle 4)
Up till now I have only been bothered about my PP levels. I was wondering what other results in my blood test are also worth keeping an eye on? I always ask if I'm anemic and get told know, but I'd like to keep a record of other useful indicators.
Any…[Read more]