We are so sorry to hear your awful news this disease does what it likes. Please take care of yourself and our thoughts are with you.
Best Wishes
Ozzy & Gayle xx

Hiya

I had to have three teeth out before I had my sct. I had to go to the hospital dentist to check it out first but my normal dentist in town took them out. I am taking Bonefos and wasn't advised to stop taking them.I had no problems with bleeding.

Ozzy

Thank you for your reply, it is interesting to hear other peoples stories and puts some perspective on the situation. I try and keep busy, working full time with a 10 year old son helps. Occassionally I have moments when my mind drifts and I start worrying but I guess this is normal.
Thank you again
Sarah Jane

Hi Ange
I too was recently diagnosed with SMM in June. PP was 30 but has slowly crept to 38, but it was good to hear from my consultant last week (I go every 4 weeks) that they wont start treatment till PP is 50+. Like you I have no symptoms, and I hope the back ache I am getting is down to stress rather than anything else, but I am due to have…[Read more]

Hiya Andrea
I live in South Wales but attend Royal Glam I think you must be attending the Royal Gwent.I started my journey in Jan 2010 and my pp was 22.In May it had risen to 44 and I started 6 courses of CDT. I had the SCT in Jan 2011 at the Univ Hospital Heath and have been in remission since then. My pp level remains at 4 and has been that…[Read more]

Dear David
Just reading your post and would like to wish you all the best in your latest round against the enemy. You can do it – think positive thoughts.
All the best friend.
Ozzy

Judy
So sorry about your loss. Our thoughts are with you.
Take care Ozzy & Gayle xx

So sorry to hear about the loss of Peter.Our thoughts are with you. Take care Ozzy and Gayle xx

Hiya Trish
I had my transplant in January 2011 and had my vacinations in January this year.I had all the ones the babies have one each month for 3 months plus pneumonia for 2 months,and meningitis x 3, and had the flu one Nov. I will have them repeated it Jan 2013. I've got the list somewhere I'll have to dig it out.
Regards Oz

Hiya all
I had my sct in Jan 2011 and my PP never got to Zero.They have been 4 since October 2010 after the 6 cycles of CDT. On my last appt in May the consultant said that it was a good remission but I always worry because its never got to zero so the mm is still there. I too dread every appt my next one Sept I think everyone feels the same. I…[Read more]

Hiya
When I was in hospital having my sct, on the 3rd week I had two bags of platelets but didn't have any more.I suppose the large amount of chemo they blast you with causes the new cells some initial problems.
Take care Ozzy

Dear Siobhan
We are absolutely gutted to hear this news.Bridget was a true fighter and will be missed enormously with all her wonderful advice.
Our thoughts are with you and the family.Take care.
Ozzy & Gayle

Hiya
I am now 15 months post transplant and my legs ached like toothache. They have improved now and my hair grew back darker and a mass of curls. Since having it cut now a few times it has gone back to its usual greyish colour and I have lost the curly perm look!I work 6 hours daily and like Tom get really tired and need to sleep.Try not to do…[Read more]

Dear Michelle
I'm just reading your post and I am so very sorry to hear about Phil's passing.I am Ozzy's wife Gayle and reading your post just brings home to me the true reality on how this cruel horrid illness strikes and destroys loving families in its path. Friday will be a hard day but as Gill says it is a celebration of Phil's life and…[Read more]

Hi Mavis…

Thank you…I will ask for one of those x x

Hi Zoe…

It's tough isn't it?! Melvin, my partner is only 38, so young! How is Dan? He sounds like he is having a tough time of it.

Melvin was diagnosed with a solitary plasmacytoma of the spine in December 2011 and had radiotherapy that helped. He is currently in hospital with multiple fractures..now on the ribs…and is being hit full…[Read more]

Thank you everyone for your lovely kind thoughts and words of encouragement. It's such a tough time for us.

I hope this finds you all well. Please keep in touch x x x