Avanti quoted me £820.00.  Think i must be older than u i am 73 , but i very fit not on treatment except Zometa light chains only 100 all other bloods good. No pain. I have been off treatment for a year see Consultant end of October, 4 monthly interval between appointments. Strange how they can quote me so much. I not had sct and do not intend t…[Read more]

I also used All Clear for my trip to Goa in January very good price; however when I enquired about America, as we have to go next year, they want £800 plus. I have been off treatment for a Year after only 4 months on initial treatment. Have no bone problems and consultant says I fit to travel. If anyone knows of another company would greatly…[Read more]

Hi Bijou

Good luck with your blood results. Try and get them to write them down for u. I have kappa light chain myeloma and they measure my light chains and other bloods. I dont have to go back until end of October. I have been treatment free for over a year. I decided SCT was not for me, so going with regular treatment. My light chains are…[Read more]

I have seen the same Myeloma consultant and Myeloma Speciality Nurse (who i am sure has hidden wings) at Addenbrooks since first diagnosis in January 2014, with the exception of my last visit as my Consultant has taken 6 months sabbatical to do some research. He due back at year end. As i don’t have to go back until end of October I expect i will…[Read more]

Hi Bijou

so sorry to hear you have been diagnosed with Myeloma. Yes its awful the medication and the process we all have to go through but its not the end of the world! If u can, stay as positive as possible, even though u may have some awful side effects from the medication. I read your story with interest, i was diagnosed in early February…[Read more]

Where in the country do you live. I was seen within a week!

I would suggest you get in touch with your local carers association. We have one in our village and she filled iut my forms enabling me to get a blue badge and attendance allowance.

I also live in Nofolk and was diagnosed in February with Myeloma. I ws taken illen route to my holiday in Goa and taken straight to hospital when we lanses . I had a scan which showed a plasmacytoma in the skull. Was flown home by air ambulance and admitted to Addenbrookes Cambridge who have been fantastiic, thats where tests showed i had early…[Read more]