Thank you, it seems that a lot of people are taking it and and seem to think it does them good. So definitely going to try it.

Bev

Hi Jan
Thanks I will look into it further

Regards
Bev

Hi
The radiologist will know all about MGUS and smouldering and it will dictate what he looks for if he has all the information.
I am a radiographer specialising in diagnosing breast cancer and there is nothing worse than a GP or surgeon only giving you half a story. If you have all the information it can change your diagnosis.
Anyway feel free…[Read more]

Hi Susie
Who asked for original lumbar spine X-ray? They
should have given all your clinical details to the radiology department including any pre exsistng conditions and what their clinical diagnosis was. As far as I am aware myeloma shows as lytic lesions on X-ray where as osteoporosis is a general loss of density. You could ring the MRI…[Read more]

Hi
I struggled with insurance as no insurance company can seem to understand smouldering, they only deal with active, and then don’t cover that!! But I am with Columbus and they have covered me, and for not much more than what a dear friend called “normal people”. That remark cost her coffee and cake

Love
Jill

Hi
I was diagnosed in 2011 after blood tests for irritable bowel!!! I had a bone marrow biopsy to confirm MGUS but unfortunately I was a bit further on and was diagnosed as smouldering. I have an outpatient appointment every 4 months and I haven’ t a clue what any of my blood results are. This is my way of dealing with this silly disease and it…[Read more]

Hello Anne
You will need time to get used to this I had 2 weeks off work sick as thing were getting too much and I needed some time for me. My mum had died in March from breast cancer, I had my cat put to sleep in June and I was diagnosed in August (not a good year 2011!!!). By the time November came I was ready to take someones head off. You…[Read more]

Hi
Thanks to everyone who has answered my e-mail. I actually feel a lot more positive about things. I was starting to get despondant about it but everyone has been really supportive and it is obviously not all doom and gloom (shouldn't have read some other web sites!!). As a radiographer I only see people in the later stages of this disease and…[Read more]

Thanks I have been trying to ignore it for a year hoping it might go away!! I think it is called burying my head in the sand. Nice to know I am not alone