Hi
Sometimes its the fault, as with me, of the person who has the mm. I thought I had a hernia and was eating painkillers when I found out. We had run out so went to AE at my local hospital hoping for something stronger than paracetemol which werent working.
I had an xray and at 8pm. It was reviewed at 9am next morning by a specialist and they found a lesion on my left leg. By 10am I had been contacted and was returning to hospital where further tests and x rays were taken. They talked to me about the possibility of cancer and by 1pm I had had a bmb and went back to work.
Luckily (I think) my wife was visiting family in Austrailia so I had a few days to get my head round the whole thing.read up on the subject and got ready to tell my wife. Sometimes its harder for the spouse who watches from the outside I think and trys to look brave 7nfront of the person going thru it.
my hospitalnis Stepping Hill within a week I had been assessed made to feel part of it, had so much information and help from macmillan, the NHS and the local community nurses as well as my GP it was overwhelming in a good way.
I am about to xtart stem cell surgery and hoping to be well by wimbledon which is what I set myself when this journey began, I work as a chef at the championships, whether I go to work it or not this year is a different matter but want to be well by then.
I found if I needed a question answered there has always been someone to answer it who has more knowledge of the subject than me or google. My Consultant has always made sure I understand as much as I have wanted to know, the nurses have tried to keep the room light hearted and still business like. Now Im about to go to Christies to see s8meone who is a myeloma specialist.
my opinion is if your not getting what you need then ask everyone you have contact with. Its a t3am thing and as the patient you are involved. For me I have foccussed on whats in hand in the 3 weeks coming up. Currently I have found out about sct and all the stuff that goes with it. Recovery seems to be down to the individual, I find work sometimes is easier than being at home. I suffer with being unable to sit still for too long. I can now make a mean cupcake tho
first thing I said to the consultant was can I start treatment in jan as I had a lot of work on. He told me no, I must stop work immediately. So I did. Looking back the initial month of adjusting to the drugs and the whole thing sinking in I was in no state to do anything at all. I know ive gone off topic at times I apoligise for that.
hope you get the treatment you want and have great clinicians looking after you as I have. My hospital all over the news currently but you need to have faith in your team, if not ask for another team!
