bobbie

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  • #148127

    bobbie
    Participant

    Hi there,

    My mum underwent a stem cell transplant at the beginning of April and was informed she’d have to wait 100 days to be able to receive a Covid Vaccine. However, the Covid programme closed on 30th June (within the 100 days). Between haematology, the GP and 119, they are unable to tell her how she can get a vaccine and keep her going round in circles insisting this isn’t their problem.

    Since closure of the Covid vaccine programme on 30th June, has anyone been able to receive their vaccinations?

    Thanks, Bobbie.

    #147870

    bobbie
    Participant

    Hi,

    My mum recently came out of hospital 17 days after undergoing a stem cell transplant. Before going in there, my mum had a really positive outlook on what was about to happen (I know easier said than done) but this treatment is potentially and hopefully going to protect your life for a very long time.

    I know she suffered from nausea quite a lot and that is bound to happen, i recommend bringing in dry packaged foods, like crisps, biscuits (ginger is meant to be really good) and maybe a lemonade (mum struggled drinking water as it made her more nauseous). I think my mum suffered most of the ‘popular’ symptoms: nausea, diarrhoea, fatigue and the mucositis. But, can I just reassure you how brilliant the staff were to my mum, they were incredible and we were very lucky that we knew my mum was being cared for and in safe hands.

    Fatigue and nausea are still hard for my mum now since leaving hospital, but I don’t think observations in the middle of the night helped my mum (this does happen, just to make sure you’re levels are ok etc). So I do recommend some earplugs of some sort as hospitals are quite noisy.

    But I wish you all the best of luck for June. Trust me when I heard about my mum undergoing a SCT I was very nervous, but the staff are brilliant and the time really does fly by!! I hope its successful for you and I wish you all the very best for the future!!

    #147747

    bobbie
    Participant

    Hi Mulberry,

    Thank you so much for this- its really helpful!!

    Where could I access these online courses? That might be a nice way to distract my mum from what is going on and just spend some quality time together.

    Once again thank you and hope you’re doing well.

Viewing 3 posts - 1 through 3 (of 3 total)