[brochoParticipant]

Hi Eve thanks for that , I was told its the liver getting used to morphine that leads to higher doses At the moment I am relying on Severadol just to get through the day Hopefully the Macmillan nurse will ring and up the Oxycontin dose soon , if not Iwould rather go back on mst morphine at least Tlcan function better on that Take care love Bridget x

[brochoParticipant]

Brilliant news Dai you and Janet must be on cloud 9!!! Heres to the next results being a big fat zero!!! love Bridgetx

[brochoParticipant]

Hi Angelina your girls sound lovely and such beautiful names Whatever you decide about a memory book they will cope because they have you to guide them through it , Sending big hugs to you all love Bridget x

[brochoParticipant]

Hi Wendy sorry you are going through it , nothing worse than raging diarrhoea!! I think a couple of people on here have had similiar problems on Velcade Have you spoken to your nurse about it possibly being a side-effect of Velcade? I hope it clears up soon and you are able to go home love Bridget

[brochoParticipant]

Hi Eve, Shirley and Jo thanks , you have all made me realise just what a high dose of mst I was on , 90mgs in the morning and 100mgs at night, so I shouldnt be surprised the initial dose of Oxycontin wasnt enough The pain has been awful this weekend so I am going to ring tomorrow and ask them to up the dose or put me back on mst morphine Eve I cant believe the arrogance of the man in the bank !!Who the hell do these people think they are to judge others without knowing them !!GRRRRRR!! My youngest daughter has cystic fibrosis and to look at her you wouldnt know it but the snide remarks from strangers can hurt and like you it makes me so angry .I would probably land a thump on their nose except I would fall over doing it !! As for banks dont start me on them !!Its a good job we can see the funny side of life and will not be beaten by the likes of those idiots though love Bridget x

[brochoParticipant]

Hi Gill I am sure that being at home is just what Stephen needs to begin to feel better Who else could take better care of him than you So heres to the good times to come , hopefully they wont be long love Bridget x

[brochoParticipant]

Hi Roz good to hear from you. I have just read your reply on another post about Michaels memorial garden , what a lovely idea and you will be able to enjoy it too and feel close to him Take care Roz and one day at a time love Bridget x

[brochoParticipant]

Dear Angelina I hope John pulls through this rough patch but I think you are wise to begin a memory book now . I used to work with children who had lost a parent and I know how precious a book celebrating someones life is to them If you ask people now you will get lots more positive happy memories ,if you leave it till afterwards grief may make it difficult for others to remember all the good times Have you spoken to Erin and Teagans teachers? Schools have access to some excellent resources and they can also support the children now as well Sending you lots of hugs love Bridget x

[brochoParticipant]

Hi Min poor Peter really does get the lot doesnt he !! I have had severe indigestion at times but have only used the remedies you already know about I hope they come up with something very soon for him it must be awful love Bridget x

[brochoParticipant]

Hi Jane and Pat welcome to our little world Jane your mum sounds like a real trooper !! Sorry I cant help with the Thalidomide question but constipation is a common side-effect wuth all myeloma treatments I was unable to concentrate on anything for more than a few minutes in the early days but it has improved as time has gone on Take care and I look forward to hearing from you both love Bridget x

[brochoParticipant]

Hi Gina great to hear mum is home now , and she will soon be back to her old self , but it may take a little time after being so poorly Hopefully it wont be too long before she is on Velcade and it works its magic for her Please give her my best wishes love Bridget x

[brochoParticipant]

Hi Angelheart so sorry your post got lost , thank goodness for Dais eagle eyes!! You must be overwhelmed after being given the diagnosis and it is terrible that there was no-one for you to talk to Have you tried phoning thehelp-line on this site , they are wonderful and will be able to answer a lot of your questions I am sure Good luck and please pop in and let us know how you are love Bridget x

[brochoParticipant]

Haha Long Live Movicol !! It is a lesson I learnt fairly early on Dai as I am on large doses of morphine as well But oh the joy of success is a wonderful feeling and to have working taste buds too!! You must be in seventh heaven long may it last!!! love Bridget x

[brochoParticipant]

Hi Min I hope Peter is not feeling so rough today . I can understand Peter wanting to be at home , especially when he is feeling lousy, but he must know by now that you know where is the best place to get better Silly boy !! He must have forgotten who is boss love Bridget x

[brochoParticipant]

Thankyou everyone your hugs and kind thoughts are very much appreciated. My lovely father-in-law slipped away in the early hours of this morning whilst sleeping He didnt make it home sadly but at least his wife was able to be with him all the time and children and grandchildren were able to say goodbye too My in-laws met when they were 15 and I can only imagine how hard it will be for my mother-in-law in the coming days but we are a very close family and will look after her and each other as best we can O ne thing struck me today though and it was that at least for most of us myeloma gives us time , for a lot of cancers the disease is so rapid there is little time for treatment So for that I am grateful Thankyou again love to you all Bridget x

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