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Hi Andy we we are all whippersnappers really!! As Debs said the under 50 site is great and I think you will find it helpful but I will look out for anymore younguns ! love Bridget

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Hi Chris sorry to hear you havent been well , chest infections are really horrible I am struggling with one at the moment!! Hopefully you will be back on top form soon How are you getting on with the lenilimide? I must admit I am struggling with Revlimid , nothing too major just dont feel great most of the time ,mind you I am not falling asleep so much now Take care love Bridget x

[brochoParticipant]

Hi Andy I think you might be right there , an under 30 group would be a very exclusive one !! I should think you were pretty peed off when they gave you the diagnosis, how old were you?!! To be honest I was 51 and still thought I was too young to have myeloma Take care Bridget

[brochoParticipant]

Hi Sarah I am on weekly GSF to boostr my neutrophils whilst on Rev . I do occasionally get pain but for the most part its not a problem Hope Frank doesnt have to put up with it for too long . Is there something else he could have or perhaps a lower dose love Bridget x

[brochoParticipant]

Hi Eve I wondered if you have tried Maxi-Joule to help get extra calories into Slim? It is a white powder , tasteless which you sprinkle onto or into foods and it bulks up the calorie count It can be put on anything from mashed potatoes , scrambled eggs , in fact just about anything ! I used to have to use it for my very fussy daughter who has always had low weight and poor appettite. It should be available on prescription Sorry if you already know about this just though it might be worth a try love Bridget x

[brochoParticipant]

Hi Keith good news that you have a possible date for your sct. One good thing in using your frozen cells is you wont have to go through the harvest process again , it can be a real pain second time around ! It wont be long before you are feeling tip -top just make sure you dont overdo it in th early days You have such a strong positive attitude to mm that I am sure it wont take you too long to recover and hopefully you will be able to enjoy the summer I think your post may have got lost amongst a bunch of others and thats why not many people picked up on it originally. At least this time around you will know what to take in with you to combat the boredom etc Take care and have a good weekend love Bridget x

[brochoParticipant]

Hi Debs you are certainly not alone!As for the weight I have been size 10 -12 for years even into my fifties but now I am a large 14 and so peed off with !! Its now getting to the point where I cant face going out Trouble is its so difficult to get any excercise as my back causes problems and lately I have totally lost my get up and go!! Moan over feel better for that. I dont get mad at having cancer but why does it have to make me ugly too!! Still we will come through it the end How are you getting on with Rev? love Bridget x

[brochoParticipant]

Hi Dai there was a post on here regarding the sub cutaneous injections for velcade Sorry I just cant remember who it was , possibly Keith If I remember he had asked also and was told it is not being used here Hopefully Keith or whoever it was ? will see your post and answer Hope you are doing ok love Bridget x

[brochoParticipant]

Hi Eve you have certaily made me think I need to think about my own situation . I was married and divorced very young but Jeff and I have been togetther for 28 years now , like you it has never bothered us and we are as married as any couple can be . I hadnt realised how difficult it could be for him when I shuffle off my mortal coil So now the dilemma , do I hire a hot air ballon saying marry me or else or just book it !!Ha ha he would have a fit !!But we will have to discuss it ,trouble is Jeff doesnt really want to talk about stuff like that very often Thankyou Eve love Bridget x

[brochoParticipant]

Dear Mary and Theresa it so sad to hear things havent worked out for your dad , my heart goes out to you .I am glad you felt able to ket us know and we are all here for you Your dad must be a real fighter and having such a lovely family must make it easier , you girls have been brilliant and if you were mine I would be bursting with pride But dont forget you can let it out on here if you need to , its hard being strong for everyone else.lots of love Bridget xx

[brochoParticipant]

Hi Debs I dont get sinus problems as such but every time I am on treatment I do get the symptoms of a cold , permanent snotty nose and constantly need to blow my nose. I suppose this could lead to sinus problems if you are prone to it Hope she can get some relief though its a horrible pain love Bridget x

[brochoParticipant]

Hi Kay Gills post just made me giggle cos when I am on bloody dex I do get a beard ( only a teent one !!) Just thought of an sct advantage of sct thought —- you dont need to deal with hairty legs or anything for months, its brilliant love Bridget x

[brochoParticipant]

Hi Eve wow that may well be one of the longest engagements ever!!Congratulations on setting the date, the sun will be shinig and I am sure your daughters wouldnt miss it for the world After all what could be more important than your parents wedding!! Enjoy the planning and all the retail therapy that goes with it too! love Bridget x

[brochoParticipant]

Thanks for the link Jet and a big thankyou to your friend too Wishing him lots of luck and no blisters!!!!! love Bridget x

[brochoParticipant]

Hi Kay I think my pps were about 14 ,but I am not certain they might have been higher Unfortunately melphalan will definitely cause your hair to go so it would be a good idea to ask for a referral for a wig now If you have a good hairdresser they can style it as you want. I didnt have a wig because I am such an untidy person and I just knew it would be skewiff without my noticing !! I settled for scarves and soft hats , if you send me your address I will knit you a hat ( bridget.rochfort@btinternet.com). Before very long you actually get used to no hair and may even feel comfy without covering up at all, especially in the warmer weather It did take me several months to recover but when diagnosed I had 98% myeloma in my bone marrow , plus major surgery , I doubt it would take too long for you love Bridget x

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