[brochoParticipant]

Well my 3 daughters got home at 5 am so I yhink its safe to assume they enjoyed Paddys day in the manner of the Irish !!( no offense) x

[brochoParticipant]

Thankyou Dai that is beautiful , I am totally in awe of your talent love Bridget x

[brochoParticipant]

Hi Kath thankyou its good to know it does get better Mind you the painful tenderness lasted the best part of a week this month so fingers crossed next month is better !! love Bridget x

[brochoParticipant]

Dear Gaye no wonder you are cheesed off you have been in agony for such a long while now. I do hope the rt starts to relieve it soon . I agree with you about pain relief though it seems to be hit and miss in some areasIn the days fo;;owing my op I was on Oromorph but I wont take that again as I couldnt stay awake longer than 5 mins I have found mst very good , although it does take some juggling to get the dose right when there is any change. have you tried them? I really hope you get some relief very soon Gaye and I am sending as many positive vibes your way as I can Hang in there we are all willing things better for you love Bridget x

[brochoParticipant]

Hi Tracy welcome to our world ! I do agree with Min about the information found on some sites , I know on this site the info is relevant and accurate.Have you checked the under 50s as well , there is also another forum for people under 5o which if you are interested there is a link for either Phil or Scotty if you e-mail them they can invite you to joim. Sorry I cant add anything to the gluten discussion but I am interested to see what others think Good luck with your CTD and hopefully you will get your sct soon and a very long remission afterwards Take care Bridget

[brochoParticipant]

Hi Clara I have those injections too and the best advice I was given is not to rub it and it definitely hurts much less love Bridget x

[brochoParticipant]

Dear Roz hang in there Today was a bad day but tomorrow will be better So many of your friends on here are wishing you well and sending good vibes One day at a time Roz love Bridget x

[brochoParticipant]

Hi Min I am so glad to hear Peter is still feeling good , heres to a lovely week off!! I have just had the worst 2 days ever!!Still very painful and tender to touch , sewating eyc and all in all I just feel dreadful but as I havent got a high temp I am reluctant to see the docs before clinicThanks to you though I am looking forward to next month Hurray the sun is shining!! love Bridget x

[brochoParticipant]

Hi Sandra hang in there I am sure you will get a lovely drug free summer . I do know what you mean though ,at times it just seems never-ending But the sun is trying to shine and it helps to make us all feel better love Bridget x

[brochoParticipant]

Hi Ron I do understand how your wife feels as I too have lost 3 inches in height and my appearance has changed completely in the last 4 yearsThe main thing though is that she does not have any bone pain. I am not sure whether they would do this procedure on the basis of appearance but its definitely worth asking Please let us know how you get on and good luck Bridget

[brochoParticipant]

Hi Keith sorry you are feeling lousy All you can do is listen to your body and give in and rest when you need to The taste thing is the worst symptom I think , drives me nuts Perhaps someone should open a restaurant for people who are taste compromised?? Could call it Th e Cardboard Cafe? Sorry I am in a silly mood today Hang in there Keith it does get better and you will struggle to remember how rubbish you felt !!love Bridgetx

[brochoParticipant]

Hi I am sure the french health system is a good one and from what others have said they are well up on treatment of myeloma , but I do think consistency and an element of trust are crucial parts of our treatment It can be difficult if you have to go to another uk hospital during a course of treament , I can imagine the possible problems with an unknown system and language barriers!!When you are on a course of treament such as Velcade you arent always feeling with it and I certainly trust staff who have come to know me and my response to treatment to spot things before I do Hope you get there soon Gill and Stephen .How is the new puppy getting on ? love Bridget x

[brochoParticipant]

Hi Nigel welcome to our merry little band !! It is the best place on the net for answers regarding myeloma as it is based on individual experiences, however if I have learnt one thing about mm its that it is a toatally individual illness where the variations in symptoms and response to treatments are unique! Being able to share experiences with each other is immensely valuable , especially as life with myeloma is about more than just symptoms and medications As for the benefit of transplants my vote is definitely worth it , the possibility of complete remission is there and failing that any lengthy delay in heavy duty meds is a bonus Good luck Bridget

[brochoParticipant]

Hi Mavis thankyou for your kind words. I am sure I will be back to normal soon , well as near as I ever am !! take care love Bridget x

[brochoParticipant]

Hi Roz thankyou it means a lot when all you lovely people on here cheer me up I dont feel sorry for myself very often ( not much point !) but its great to have friends when you do I am hoping to be able to bear my clothes touching me at least tomrrow , otherwise I will be sark naked not a pretty sight Hope you have a good weekend and you are looking after yourself too Have you booke a holiday yet ? love Bridget x

[Author]

Posts