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Hi Min poor Peter he must be feeling wretched I hope they can sort it out for him. I have been told to carry on taking Aciclovir and Lanzoparole whilst I am on Revlimid, from the way the conversation went I got the impression that is standard practice love Bridget x

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Thankyou all for your lovely birthday wishes It has been a lovely daybut the children and grandchildren have just left and I am now officially knackered !!But worth it ! Hope you are all enjoying the evening love Bridget x

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Now I feel like the odd one out !!My husband has complete control of the remote these days and I havent seen any of this series I shall look out for the repeats , I am sure there will be lots love Bridgetx

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Dear Nettie thank you so much its been a lovely day but the children and grandchildren have just gone and I am shattered Good job I have another year before the next one !!Hope you are well love Bridget x

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Dear Gaye OUCH!!no wonder you have been in agony I hope they get you sorted very quickly . lots of love Bridget x

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Hi Jen I recently asked my doctor about the rules for using velcade againThe reply was "Theirs always a way to get what you need dont worry" I believe this approach is fairly common , and our doctors are very well practised at using different approaches to get us drugs they prescribe At UCH London which is a teaching hospital velcade is readily available for second and third lines of treatment when it has been effective previously Good luck with your treatment best wishes Bridget

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Hi David I cant give you an exact figure but I do remember being told they were too faint to quantify .Good luck with your research it will interesting to hear what the consensus is love Bridget x

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Hi Sylvia I can understand how frustrated you must feel , as lovely as it is to be looked after , there is nothing like being able to do even mundane tasks yourself again Fingers crossed it wont be long . Mind you the bonus of going out more must be a nice break for you both and the cruises sound wonderful , I have a friend who is going on a baltic cruise very soon too , you will have to post some of your holiday pics for us to see love Bridget x

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Hi Gill sorry Stephen is not feeling great but I hope that rotten dex does its magic very soon . I start back on it next week , 40mg lovely . I cant remember if Stephen has had radiotherapy for his back painbut I am already finding an improvement in mine It hasnt gone comltetely yet but it vanished over the weekend , mind you today is a bugger!!Anya is a lovely name I m sure she and Echo will end up being the best of friends ( I am sooo jealous!!) Mind you I dont envy you the sleepless nights, I would probably be too soft at that stage Cant wait to see the pics Take care Gill love to you both Bridget x

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Hi Sarah I am sure it doesnt apply to you though!! I wish I had a fur coat this winter but doubt I would be brave enough to wear it !! love Bridget x

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Hi Sylvia you sound like such a positive person that I am sure it wont be long before you turn the corner . I take mst morphine, which is slow release over 12 hours, twice a day and I have found it very good .I believe it is used for a ot of myeloma patients with bone damage Perhaps it might be worth discussing with your doctor ( apologies if you were already aware of it)Well I had better get cracking on the sunday roast I hope you are having a good weekend love Bridget

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Hi Sylvia reading your posts it seems like our cases may be very different . I wasnt bent over at all before my op , other than stooping because of the pain As for the pain it didnt seem many weeks , perhaps 4 to recover from the surgery , however I have had continuous pain my back since I am not sure how much of this is due to the metalwork and also I have extensive bone damage everywhere except my left arm Sorry if that doesnt help What sort of pain relief are you on? Your consultant does sound very good perhaps you need a pain review. Since reading Gayes post I have been chuckling to myself just imagine if we all went to the same clinic!!Crikey what a sight that would be , but much more fun ! I have fingers and toes crossed this next treatment gives you a much longer break love Bridget

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Its true we women do love our shoes .Sharon I am crosssing fingers and toes you will be in the sexiest pair of heels you can find for the wedding!! Jo up until 2 years ago when I had my hip replacement I would never wear flat shoes !!Alas now I have no choice , but I do still manage wedges occasionally and its worth the pain !! Sarah I was told it fur coat and no knickers!!As I dont own a fur coat I am in no danger of being accused of that one !!! When we were younger the worst crime -shoe-wise was black tights and white stilletoes!!!Only the local lady of the night wore those !! love Bridget x

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Hi Sandie how lovely to hear that your mums doctors really listened and responded so well to your request . I agree with you that being direct and telling them you expect no pain is a good approach Unfortunately some doctors are better than others in this procedure and if you get a duff one its awful Heres hoping its good news when your mum sees the doctor next love Bridget

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Hi Sylvia sorry you have had a relapse after a short time , but lots of people have had great results with velcade ,hopefully it will be the same for you When I was diagnosed 4 years ago, after a year of agonising back pain, it was discovered 2 vertebrae had been destroyed and a third was also damaged .Before I could begin treatment for myeloma I had a surgical reconstruction of my spine This involved a series of titanium plates and screws being erected around my spine .The operation was over 5 hours long but successfull, there was a high risk of paralysis in my case. Within a couple of days I was able to walk a very short distance and I went home a week later Initially I wore a back brace to help with posture , though it was uncomfortable and I didnt wera it for as long as suggested. It took a few weeks to get over the surgery but even during this time I was walking unaided. I have been fully mobile since although I do need to take mst morphine for the pain and I am not able to walk or stand for long periods . I am just very grateful to the surgeon as without that op I would have been in a wheechair .If I have missed anything that you wanted to know let me know Best wishes Bridget

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