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Hi Phil I have the feeling nothing will stop you and certainly not mm!!Keep on twanging and giggling but dont forget to giggle too love Bridgetx

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Dear Gaye good luck for tomorrow , I hope you dont have to wait a long time for your meds , its so frustrating the first day of any new treatment!! Have you got a date for your mri yet? I had my first appointment at radiotherapy today and was suitably marked for life !!So now I can be known as the ciggy-smoking ,whale with a tattoo from Luton Phew soon there will be no room on the page for my aliases!! love Bridget x ps I certainly will never have a real tattoo it blooming hurts !!

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Hi Jenny its good to hear your dad is a bit better It does take a while for things to settle when you first begin any treatment and I think dialysis must be exhausting . I hope you get rid of your cold soon , theres nothing more miserable !You are certainly not being selfish wanting your dad home , I am sure thats what he really wants as well Fingers crossed it wont be long now love Bridget

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Thankyou all for your good wishes they are very much appreciated. Sharon I can see why it was better for you to stay in as seven year olds cant get their heads around mummy not being able to do what she normally does and I think its hard for us mums to switch off too mums . I hope you get some relief soon and I can understand how frustrated you must at not being independant, its the worst feeling. Hopefully your doc will have a plan to knock the blooming mm back into submission really quickly. Jo thankyou I have high expectations of revlimid too , I can put up with annoying side-effects as long as it works Pam I am trying to get all my backload of washing done this weekend so that I will be able to switch off next week mind you as it is I doze off at the drop of a hat so goodness knows how long my naps will be !!Just call me dopey from now on , no change really !! love Bridget x

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Hi Ron thankyou for your kind words.How is Puline now? I hope she is feeling better please give her my best wishes love Bridget x

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Hi Jean congratultions your new grandaughter is so beautiful and Madelyn is a lovely name . I hope you get to see her very soon I didnt really understand how special the relationship with your grandchildren is until the eldest was born and I was just as excited when the other 3 arrived . love Bridget x

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Dear Gill now you have given me a massive fit of the giggles at the thought of your poor dog waddling back in !!Those evil Wills have a lot to answer for !!The real test for me will be tomorrow when my grandson is here as we normally cook lots of very fattenig goodies it will be a miracle if I can stop myself eating them , but not my fault if Will isnt back Thankyou for your message earlier , I would not have thought you were preaching for one minute you arent like that I think giving up is one of those things that will happen when the time is right , maybe not yet for me but who knows!!Anyway I quite enjoy the challenges it brings , like putting all my warm clothing over my pyjamas so that I could have a sneaky puff out of a hotel window last year!!( I would have been so embarassed if I had been caught though!!) love Bridget aka smoking thunderthighs

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Hi Lorraine blimey I will never moan about how long it takes for our benefits to go through again after reading your post Thank goodness you were granted it at the higher rate. Is the form more specific do you think ? Here the DLA questions stick to a limited criteria and dont always allow for illnesses that dont fit them My daughter has cystic fibrosis which means a lot of her care needs are to prevent her getting worse and she was refused 4 times , although she now gets it without needing yearly reviews Do you have to reapply at any stage? love Bridget x

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Dear Gaye and Sharon thankyou for putting my mind at rest Gaye I will have everything crossed for you to get your rt very soon . I was lucky in that I had a recent mri for them to go on which speeded things up Mind you I have always found UCH to be excellent at organising vital treatment It occured to me tonight that I am prepared to put up with any side-effects of Revlimid as long as it works, I realise I am at the stage where I cant be too picky now. Sharon I hope you start to feel the benefit of yours soon Are you glad you had your rt while an in-patient or would you have preferred to have travelled each day? It was not suggested to me but I would have refused , although I think I will be knackered by the end of the week –more snoozing !! love Bridget x

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Hi I got one too and also assumed it was a site I joined ages ago .I havent responded nor will I Blooming nuisance why cant these people get a life!! Michelle I do hope your sons problem gets sorted very soon it must be so stressful for all of you love Bridget x

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Dear Min thankyou I must admit to being a little nervous for no good reason . I think your point about the tumour throwing out myeloma cells is spot on especially as they areon our spine. Unfortunately I will have to travel to London each day , although its only 30 miles it can be a pain on the motorway, but I would rather come home each day than stay in hospital. I hope Peter doesnt have to wait long before he gets his rt.We can compare Revlimid notes as go along and hopefully it will do the trick love Bridget x

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Hi Michelle I am surprised this has not been offered to your mum before given that she has a lot of bone damage .I was on Parmidronate for over 3 years and it certainly helped with bone pain , I always knew when it was due The infusion is ok just means spending a couple of hours on a drip once a month , sometimes it can be a little painful for a couple of days till it kicks in . I have recently been changed to Zometa which does the same thing but has been shown to work well with other drugs in reducing myeloma levels So pleased to hear mum is still doing well As for being a member of the snoozy club tell her its very exclusive!! love Bridget x

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Hi sorry you are having to go through this its an awful time but things do get easier as you all learn to cope with myeloma and its treatment. There were times in the beginning when I refused to give in to tiredness etc and pushed myself to the limit I was trying to hang on to old life , as perhaps your brother is too , but eventually you learn to pace yourself My mum is elderly and has been devastated by my having myeloma and she chooses to talk about when I am better , but I dont disillusion her as this is her way of coping Please dont feel alone there are lots of wonderful people on here to support you and your brother too if he wantsFor now just take one step at a time and ask us all the questions you want , it will get easier to cope with Best wishes Bridget

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Hi Keith I was on velcade recently and my platelets did drop quite significantly Its monitored via the pre-chemo blood test and if its too low you will need to be given platelets through your line It is normally given on the ward with dex on the day of treatment and the day after . I was recently changed to Zometa after having Prmidronate for over 3 years , its been found to work well with velcad and other chemos in reducing myeloma levels Fatigue may be a problem so try and rest when you can Constipation can be avoided by taking laxatives beginning the day before your treatment if necessary Good luck when do you start? love Bridget x sorry for butting in to your post to Gaye just thought another experience might be useful

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Sorry Gaye but now you have set me off giggling too !! The thought of prancing sylph like through the fields ( in Luton ???) is just too much to bear I will give up all thoughts of Wills as he is so fickle as to marry a young , beautiful ,rich girl ( cant think what he sees in her ) I now have a new plan to feed Jeff all the goodies then I can feel saintly if not svelte just yet David the mirror is really to horrible to contemplate from any direction!! love Bridget x Thunderthighs

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