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Hi Sylvia good to hear from you but sorry you are back on treatment Eloquent seems an unusual name for a trial made me chuckle! When I was on Rev and Dex the fatigue was a bit overwheming but you do get used to it Constipation can also be a problem , my docs reccommended using 3 different types of laxatives regularly eg Movicol , Senna and Lactulose Its best to keep on top of it rather than wait for it to become a problem Good luck and let us know how you are getting on love Bridget x

[brochoParticipant]

Hi Cinzia poor you sickness is really horrible . I have founf Odansetron to be the best ant-sickness meds , it can be given as IV before your chemo Have a chat with the nurses I am sure they can come up with something love Bridget x

[brochoParticipant]

Hi Terry it seems wrong in this age of wireless technology that wifi access isnt available especially when you are stuck in hospital. If your home broadband is with BT they have wifi access all over the place and its free , you can download a map to see which is the nearest London has loads Good luck on the 5th you will be home before you know it love Bridget x

[brochoParticipant]

Dear Min when I read your post it made me a little sad You have been a towethat you are able to move on , as you said r of stregth to so many of us , always good sensible advice tempered with kindness , even when things were really tough for you Thankyou for your kindness and wisdom . Whilst you will be missed by so many of us I am pleased for you . Enjoy life each and every day is precious Sorry but I am not very good with words today but I will see you on facebook and perhaps you will pop back on here occasionaly to let us know how you are too Lots of love Bridget xx

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Hi Dai I will cross fingers and toes that you get that 0.5% you need Good luck love Bridget x

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Hi Mavis thankyou for posting your photo its lovely and so nice to see your smile love Bridget x

[brochoParticipant]

Hi David sorry you have got landed with a nasty cough hopefullly you wont have it long If your temperature stays on the high side it would be worth a visit to your gp to be on the safe side though. Get well soon love Bridget x

[brochoParticipant]

Hi Sarah I am glad Henry has got the date for his sct and I hope they get his infection under control quickly . Having somewhere for you to stay will make it a lot easier for you too just make sure you look after yourself too Hope all goes well and it wont be too long before Henry gets a long remission and you can get back to some normality love Bridget

[brochoParticipant]

Hi Jean poor Frank isnt having a good time bless him . I know I had Pregablin and they made me feel very odd and I stopped after a couple of doses too , mind you for the life of me I cant remember why I was on them !! The trouble with shingles is it can take some time to show itself and the pain must be awful I hope others can give you more helpful info I thought the pain in my side recently was shingles without a rash and only mentioned it in passing to the doc but my mri showed the tumour was almost touching the spinal nerves and they believe this was the cause At least Franks mri has ruled out anything like that I hope things improve soon. love Bridget x

[brochoParticipant]

Haha sorry me too I should have read your post properly sorry Good luck with the harvest Bridget

[brochoParticipant]

Dear Sue thank you for thinking of me when you and Michael have so much on your plate too. I know how Michael feels about not knowing being the worst it is making me nervous too Today is the third day my dex pulse 40 mg a day for 4 days to try and stop the tumour from getting any bigger and crushing the spinal nerves Trouble is dex is just awful I have been shaking all day and feeling very nervous , I know its only the dex though messing with my brain (small thought it is) hopefully back to normal at the weekend Tomorrow should be fun dex in the morning followed by knockout chemo in the afternoon at least I will get some sleep . I hope for your sakes and mine we get some plan of action soon , I do trust my doctors totally and I know they are really trying hard to find a solution Stay strong ,keep smiling I know things will get better soon love to you both ( sorry if its a bit rambling I did mention its a dex day!!Tee-hee xBridget x

[brochoParticipant]

Hi Liz thankyou I feel very lucky to have the support from you and all my cyber friends on here its what makes this site so special Take care and hope you have a good weekend love Bridget x

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Dear Mavis thankyou for your kind words you always put things so well from the heart. I am lucky in being mobile still but that causes the medics to panic as I dont react the way they expect me to!! When I was diagnosed they couldnt work out how I was able to walk when 3 vertebrae had been destroyed and this time they are really anxious as the tumour is very close so lots of reminders what to watch for and what to do Still I like to keep them on their toes–haha! Retail therapy is definitely good for the soul I bet you are looking forward to your new suite, hope you dont have too long to wait When you find a scooter perhaps you can customise it, I saw a piece on the news where people decorated their scooters with mirrors , flags even photos Have a good weekend hopefully we will have a few more sunny days before it gets cold again love Bridget x

[brochoParticipant]

Hi Terry good luck for Monday it wont be a walk in the park butit doesnt last for ever and to be drug free and have a long remission makes it worthwhile. I agree with David a laptop and phone are essential to stop boredom and you wont feel so isolated Perhaps you could ask if you can take your own pillow in hospital pillows are horrible npoisy things!! A mug for your cuppa as plastic ones arent nice and it means you get more tea too Moist toilet tissue in case you have diarrhoea, also a lip salve. You will probably sleep a lot just go with the flow and dont try and stay awake listen to your body it knows what you need to recover . Your taste and appetite may be all over the place so get friends and family to bring you any tasty snacks you fancy , the next day it might be something completelt different . I craved jelly one day pickled onions the next!! The real recovery is when you get home just take things slowly and try not to get frustrated at not being able to do much sometimes it happens quickly and others take longer to get their strength back Take any help offered people are very good and feel better and less anxious if they can help Keep posting if you feel up to it Bridget

[brochoParticipant]

Dear Sue I can only imagine how tough the last few months have been for you both , it really seems so bloody unfair after all you have been through . I hope that radiotherapy does the trick , as you say its been caught early and from what I have read the success rate is pretty high. I can understand how poerless you must feel when there is no active treatment plan for Michael but hang in there sounds like your docs are on the ball . I may be in a similiar position soon as trials are my suggested treatment but I would be excluded from most because I am a non-secretor. Still all any of us can do is try and stay positive and keep going It must be terrifying for your daughters and mum to watch you go through so much but given a little time they will rally round so try not to worry about them too much We are all rooting for you both Sending you both a big hug and love Bridget xx

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