RochfortBridget

Forum Replies Created

Viewing 15 posts - 991 through 1,005 (of 1,086 total)
  • Author
    Posts
  • #89001

    brocho
    Participant

    Dear Roz how strong you are and Michael too , hang in there and keep fighting it . If it were me I would be insisting on that meeting today , otherwise you wont see anyone but registrars till Monday .But at least Michael is in the best place to get treatment for the infections. Never give up Roz love Bridget x

    #105800

    brocho
    Participant

    Hi Lynne what an awful time for you both no wonder you are frightened but dont give up hope It sounds as if they are beginning to get things under control, Dex is an amazing drig and very useful in myeloma as it reduces inflamation and helps other drugs to work There are a couple of people who post who have had acute kidney problems and needed dialysis but they werent on it forever , I am sure they will reply to your post and give you more reassurance than I can Four years ago I was in a bad way too , I had lost 3 vertebrae to myeloma and had major back surgery to prevent paralysis, my back is now mainly metal rods and plates …metal mickey!!The percentage of myeloma in my system was over 90% within a few months of starting treament this had lowered to a point where I could have a stem cell transplant After my transplant I was told the paraproteins were too low to quantify , meaning a partial remission which lasted 18 months I wont deny the treatment was tough but life got back to a normal state , maybe different but good all the same S please dont despair things will get easier and dont forget we are all here to support you both Sciatica is an awful pain so please try and make sure you take it easy or your husband will be worrying about you as well and dont feel guilty Have you got close friends or family who can help at all ? If you have ont be shy or too proud to ask them to help , they will be only too glad I am sure My best wishes to you both and hang in there good times arent far away Bridget

    #96726

    brocho
    Participant

    Hi Gill nice to see you on here I agree wth Gaye you need more info , if I were you I woulld ring Dr Rabin he is very good at ringing back Please keep us posted love Bridget x

    #89052

    brocho
    Participant

    Hi Sue a lot of us do have bone pain most of the time and it could be just that You should make an appointment with the doctor or specialist nurse to review the pain medication it may just need adjusting or even changing the type Try not to worry too much I am sure if your doctor has any doubts they will do scans and x-rays to be sure Either way its better to speak to them sooner rather than later love Bridget x

    #88730

    brocho
    Participant

    Hi Michelle wonderful news !!! I am so pleased for your mum and you it must be a weight off your mind and now mum can get better much more quickly at home love Bridget x

    #96721

    brocho
    Participant

    Morning David good to hear you are still feeling ok .I have had a few occasions in hospital where mistakes with drugs etc and I must admit I usually do my own check , I cant imagine anyone getting away with it with you either !!In saying that its the last thing you need to worry about when you are feeling lousy but we are so vulnerable when we are in-patients its hard to complain. Hope you never have need to either Are you still getting your cuppa in matching china?? love Bridget x

    #89047

    brocho
    Participant

    Hi Kathleen glad you got here and who wants to be normal , not me !!! I find it slow to get into services and the discussion forum perhaps it needs a tweak or two Glad you levels are on the up love Bridget x

    #89028

    brocho
    Participant

    Hi Norman I have been having these infusions for the last years Initially I was on Parmidronate once a month, fairly simple takes about 2 hours Usually ache for a couple of days afterwards , a bit like flu , bit after that no problem Having changed to Zometa recently , just had my second dose I have had no side-effects as yet .I do find it helps ease the bone pain and I try to drink lots love Bridget x

    #108546

    brocho
    Participant

    Hi Jean thankyou they made me chuckle too love Bridget x

    #96715

    brocho
    Participant

    Hi Shirley I am so pleased you have got the date now and it wont be long before its all over and you are home again If you arent up to much on xmas day have another xmas when you get home , double celebration !! I hope you will be able to keep us posted and we can cheer you on Good luck I am sure it will go smoothly love Bridget x

    #96628

    brocho
    Participant

    Hi David I am now a lovely shade of green ___ matching china !!!!I am sure its not a mistake they obviously know class when they see it love Bridget x

    #96574

    brocho
    Participant

    Hi Norman thanks for the info I will go down that route if my doc wont just e-mail it to me Take care Bridget

    #96591

    brocho
    Participant

    Hi Debs thats a very good point especially for someone like you with very little damage and good general fitness .I suppose it comes down to individual needs but better to knock it back as early as poss love Bridgetx

    #89020

    brocho
    Participant

    Dear Roberta firstly please dont ever feel you need to apologise for letting your feelings out , there are lots of us here who are only too glad to listen and help if we can . No wonder you feel so low I can only imagine how hurtful it must be . The only thing I can think of is maybe to write a letter asking for help for your husbands sake , perhaps they really dont realise how much you need them . If they dont respond then they arent worth knowing and as you say you will have to move on .It will be their loss Roberta you sound like a lovely caring person who doesnt deserve such unkindness. If I were you I would perhaps ask to speak to a macmillan nurse or advisor to see if they can advise you about getting some help Sorry my words probably arent much use but please keep posting love Bridget x

    #96621

    brocho
    Participant

    Hi David good to hear you are settled in sounds like 5 star accomodation !! I love the idea of tea and toast facility!! I used a dongle when I was last in , not bad but couldnt always get a sgnal Are you on bt broadband at home ? I have just signed up for the free hotspots thingy which lets you use other bt users access , no extra charge just the same as using it at home You can look up the nearest hotspots on a map I think its called bt infinity Good luck for tomorrow and hope you get a god nights sleep love Bridget x

Viewing 15 posts - 991 through 1,005 (of 1,086 total)