RochfortBridget

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Viewing 6 posts - 1,081 through 1,086 (of 1,086 total)
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  • #88574

    brocho
    Participant

    Hi Sharon and Tina you both ook lovely Tina my husband was mistaken for my son the other day!!!I was not particularly amused at first but I was having velcade at the time !!I did laugh later though love Bridget x

    #96489

    brocho
    Participant

    Hi Min I understand about the family thing I have an absentee brother who would have been my only choice but he is rarely seen !!My hospital would not consider a donor transplant for me anyway the last time it was discussed the high mortality rate was stressed as a serious factor given the overall state of my health However they are now going to give me a second sct using frozen cells from the trial I was on last year , previously it was a definite no ! This is a bit of luck really because harvesting those cells last year was very difficult and Idont think I will be able a have another go. So like Peter I am on velcade , for 6 cycles Just beun the second one and apart from dex sleep deprivation and some constipation its not too bad .All we can do is go with what feels right at the time I suppose although I must admit to still having moments of resentment that I only managed a 3 month break after a year of hard treatment Fingers crossed that we all get a decent one this time The support we give each other on here is such a godsend to be able to compare notes as well Heres to carrying on!! love Bridgetx

    #88565

    brocho
    Participant

    Hi Debs I had been hoping to go this time but I really am not up to it but I will get to one soon !!You will be our intrepid reporter mind you I bet there is so much info it would be hard to take notes on everything love Bridgetx

    #96485

    brocho
    Participant

    Hi Min I dont know much about the possible benefits of turmeric I shall have to read up on it , but the timing is interesting . In my case on both times when I have relapsed there as been only a very slight rise in my light chains despite a tumour and quite a lot of new bone damage . I am beginning to think that there will be less reliance on paraprotein and light serum free light chain levels as an early indicator of relapse in the future as I am one of several people lately .Has the possibilty of a second sct been mentioned for Peter? love Bridget x

    #88521

    brocho
    Participant

    I thought my pic would come up but think i have managed to lose it !!!aaargh— No just realised it comes up afterwards I think this site will be so much better when my little brain gets used to it but it is so nice to see everyone The cutie on my lap is my youngest grandaughter Joni x The attachment is my lovely family taken for my mother-in -laws 80th it was a stressfull hour or three organising the entire clan of 35 but worth it x

    #88506

    brocho
    Participant

    Yippee I made it at last !! Glad it wasnt just me though The site looks great thanks again Bridget

Viewing 6 posts - 1,081 through 1,086 (of 1,086 total)