[cazzieParticipant]

Hi Gian,
Yes, I had my 1st Pfizer two weeks ago tomorrow. The experience was painless and to date have not had side effects whatsoever ever. I can’t wait for my second jab!.
However, everyone it is different, as Myeloma is to all of us with this condition. Just a bit of back ground…. Diagnosed April 2018.
I’m 2yrs and 2mths post Stem Cell Transplant (my own stem cells), in remission. and no maintenance drugs.

[cazzieParticipant]

Hi. Just to say you’ve come to the right place for support. Very friendly bunch on here. Sorry to hear that you have been diagnosed.

I am also under Hammersmith hospital, for MM.
I have a lovely Consultant, I was diagnosed April 2018, 6 rounds of chemo, Stem Cell Transplant undertaken November 2018.
Currently on no treatment and in remission.

To be honest, I sailed through cycle 1 to 4, then suffered with horrid stomach cramps and severe fatigue, from cycle 4 to 5. It was tough, but doable. The transplant coordination doctor was also very daring and explained and answered all questions.
The transplant itself went well,however, There were days of which I was low in mood and felt weak. Luckily no infections. All I can say is trust in your Consultant and health care team at Hammersmith and I hope you have a good GP. Also, the McMillan support coordinator there is fantastic. You can see her at the hospital. I can only say how it was for me and everybody is different. I wish you the best in your journey.

[cazzieParticipant]

Hi ya. I too suffer with PN. I use Frankincense & Myrrh neuropathy rubbing oil. It appears to give some relief for me. Just Google it and see what you think. I am not making any recommendations just making it something else for you may want consider.
Regards
Cazzie.

[cazzieParticipant]

Hi ya. I too suffer with PN. I use Frankincense & Myrrh neuropathy rubbing oil. It appears to give some relief for me. Just Google it and see what you think. I am not making any recommendations just making it something else for you may want consider.
Regards
Cazzie.

[cazzieParticipant]

Hi…There is no need to apologise! It has been a rough 2020, plus, going through chemo and having to shield is a treble whammy.
I’m sure a new hair do and colour would give a definite boost. However, I would make contact with your specialist Nurse and get advice from your health team, to be on the safe side.Good luck.x

[cazzieParticipant]

Hi david,
Thank you for your reply. To hear your story was encouraging,hopeful and uplifting for me. I do hope your PPs remain as they are or decrease.
I wish you the best.

[cazzieParticipant]

Hi everyone.
Newbie to this forum….but not to MM.
I had been diagnosed a year ago with MM. I have completed all treatmeant, having Stem Cell Transplant in November 2018.

Just wanted to say that it was a year of anxiety, fear, unpleasant side effects. Now out the other end, it was do able. So to any one who is going through chemo and or stem cell transplant, hang on in there.

I have been told by my Consultant that the Paraprotien level is now at 4g/L, possibly could decrease further.(hopefully)…which I have achieved a Partial Remission. I feel very well and not on any treatment. I have decided not to worry about when this beast will raise its ugly head! So for now I’m just gonna get on, with life, full steam ahead. Hopefully to have a very long partial remission.

To all on this marathon / journey, I wish you all the best.

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