[christinehParticipant]

Hi there David – thank you so much for your kind and supportive post.

I’m very lucky in that I (currently) have a patient and understanding employer – never ever been under pressure to return to work – I guess it’s not feeling like I’m doing anything worthwhile is my battle. I appreciate that everyone’s journey is different – I suppose I was very naive to think that I’d come out of this with the same capabilities.

I will take on board your advice and push my healthcare team for more support to conquer this fatigue – though I cannot complain about my care I think it’s easier for them to just tell me that “it’s normal” even though it feels very far from that to me.

It’s probably daytime tv (with the exception of countdown!) that’s driving these feelings!

Thank you again for your reply, I wish you all the best,

Christine

[christinehParticipant]

Hi Peter

Hope you are well and thank you so much for your very detailed post. I have to say that I found it very informative and did make me understand why I would get few replies. As you say, it’s all very individual (which is perhaps the most frustrating part!).

Thank you also for your very kind words. I too wish you all the very best for the future – it sounds like you are being dealt a very unfair hand, what with myeloma and prostrate cancer; I hope your treatments continue to allow you long and uncomplicated periods of remission.

Take care and thank you so much again,

Christine

[christinehParticipant]

Hi Graham, David

Thank you both so much for taking the time to reply. I’m so pleased to hear that the reponses to treatment have been brilliant and long may they remain that way!

Over the weekend I made the decision to go ahead with STC, and the process all starts next week! Probably better that way, otherwise it would just be that cloud hanging over me.

Thank you again – all the best,

Christine

[christinehParticipant]

Hi Jan

Thank you so much for taking the time to write such kind and supportive words – especially as you are also suffering.

I will take that on board and will get in touch with the hospital regarding the anaesthetist.  I bruise incredibly easily and I’m also fearing the soreness afterwards.

I am lucky in that I have an extremely supportive family and my husband is more than happy to attend appointments with me – I’ve had a flurry of them the past few weeks, which I’m guessing is quite normal.

Anyway, onwards… Thank you so much again Jan for all your very helpful advice – and I wish you all the very best too.

Christine

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