[clareParticipant]

Thank you ComfortablyNumb, great song by the way..lol.. I'm happy you've had a,great result, thank you for sharing your experience with me and mum. It really helps her when it comes to making the next decisions regarding her treatment x

[clareParticipant]

A Massive thank you to all your replies.. just being able to hear other peoples experiences is wonderfully comforting..:) Dai. You make an interesting point, and I have looked at some American myeloma sites. However, I'm not sure yet what alternative treatments we have here in the UK. I will absolutely get as much info as possible, to help mum make the best decision for her. I know at the moment she feels like she wants to get all treatment over with and move on with her life. At least now when we have the consultation at St Barts, I will be better I.formed as to what questions to ask. Thanks again everyone…its much appreciated!..:) xx

[clareParticipant]

Thank you…I will definitely start looking for that expert!..x all your advices have been very helpful.. I will show mum all you have said.. and I know she will feel a whole lot better about it all..I guess the first step is having a consultation at Barts, and seeing where that takes us. Interesting Tracy, I didn't know you could store cells for future use, knowledge is definitely power!. X thanks again everybody, and I will let you know mums decision. Xxx

[clareParticipant]

Hello Ann and Pete. My name is Clare, and my mum was diagnosed with myeloma in October 2012. She has just finished 6 cycles of CTD, and has been offered a referral for SCT at Barts. Does anybody have any experience of Barts?and is this treatment as terrifying as it sounds? we are all a bit scared..she has responded well to the CTD, with her pp level coming down steadily from 33.5 to 5. any advice is gratefully recieved.. thank you. x

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