[copterParticipant]

Thank you – would you mind if we could have an email exchange as would be grateful if I could ask a few more things if your patience is up to it?!

copter30@hotmail.com

Thanks

Simon

[copterParticipant]

Hi
Thanks for getting back to me. I am just starting on isatuxamab/pom/Dex as the Carfilzomib didn’t stop progression of disease. Did you try a monoclonal antibody?
Is Panobinostat 5th line through NHS?

Thanks for your time in this!

Regards
Simon

[copterParticipant]

Ps why kidneys protected?

[copterParticipant]

Hi
Good to finally hear from someone non secretory! I’m having the same problem – endless chemo anD SCT and no remission. Can I ask which treatment gave remission?

Simon

[copterParticipant]

How about the increased pain in spine and rib cage you mentioned? Did that go ?

[copterParticipant]

How did cycle 2 onwards go? Just started ge same regime this week

Simon

[copterParticipant]

My pathway has had similar bumps as you know S.Nose – my reaction to DT pace was not as effective as the consultant would have liked this time last year but I went on to have SCT in July.

It’s hard not to despair, but keep going, focus on the day to day and the small moments of pleasure that can be found therein.

Feel free to email me anytime

All the best

Simon

[copterParticipant]

Sending you all Best wishes with DT pace, I am evidence that you will come through it and it will do its job for you.

Simon

[copterParticipant]

Many thanks that’s really helpful
Simon

[copterParticipant]

Dear Slimynose

I have some experience of VTD not fully working and being put on DT pace last year

If you would like to email I would be happy to share my experiences

copter30@hotmail.com

Best regards

Simon

[Author]

Posts