Hi Rabbit and thanks for the welcome and the post. I had done my own research but did some more tonight after your message. It is true that although unusual impacting on hearing is a possible side effect with bortezomib. There are apparently some alternatives, a reduced dosage, stopping that med altogether, different meds that don’t have such an impact, etc. I can send you the screen shots I took if you would find the info useful?
Having had my latest bortezomib injection today, I’ll see how things go overnight. I’ve already flagged this issue with the chemo team and I know they have raised this with my consultant. I also raised it at my appointment today. There has apparently been no answer as yet so I will follow this up in the morning.
I did also see my GP on Monday, they suggested asking the chemo team to refer me to ENT, however the nurse who I saw today suggested I go back to my GP! So stuck between a rock and a hard place!
