[debParticipant]

Hi Mike, Thank you for responding and for the advise, my Husband as of yet hasnt got any further,he is trying to avoid A and E cant understand why the team at the hospital cant just make the referral for the x Ray’s or scans required, he has today tried to talk to the hematology team and the GP with no joy. I am sure he will some how get sorted, just very frustrating! Kicking myself for not being more on the ball re the dental treatment and the Zometa, but as you say the dentist should have realized as he is fully aware that Husband has it monthly (certainly wont have anymore at the moment). Pleased you are in remission, and wishing you all the best, Debs.

[debParticipant]

Hi there, I am sorry that you find yourself in this situation unfortunately I feel it is often the case that things can take time. Do you know when your outstanding blood results will be ready? My Husband has myeloma and his specific myeloma bloods (paraprotein and light chains) normally take a week. From your post it sounds like the GP needs to re refer to haematolgy. If it was me I would be asking the GP if these results are ready, and should he now re refer you to the haematologist. Sounds like regardless you need to see or speak to them again to get a diagnosis. In my Husbands case he was back and for to the GP for over six months, and persistance is what eventually made the GP take things seriously. Having said that his bloods at that point only showed a slight anaemia and low white count but he had really deranged liver function which turned out to be not related to the myeloma. I am sure you will get sorted soon. This is only my opinion, the ask the Nurses on this site are really good for advise. Wishing you good luck xxx

[debParticipant]

Hi Margaret,

Yes it is worrying when you see how crowded places are, and I was even more worried when the advise that the shielded could go out on Sunday was made. Several friends have made the assumption that that means my Husband is no longer at risk ,so I am pleased to see the updated notes on this site today which certainly reflect how I feel, and gives clarity.

I am pleased you made the right decision for you and your husband, and I hope that I will as well.

Thanks for responding to my post

Both stay safe and well,

Deb

[debParticipant]

Hello,

Until today I have been an occasional reader of this forum, and have asked a few questions of the Nurses which I have always found an incredible support, and lifeline. My Husband was diagnosed at 52 in November 2018, had 6 months of induction therapy prior to an SCT in July 2019. He achieved a really good partial remission, and has since been on 2 monthly reviews with the Haematologist. Having read the last 2 posts I had to register today to respond, as I have found myself in a very similar situation over the last few months. I work as a Nurse in the private sector, and the fear and uncertainty of what to do during this time was all consuming, and for me a very lonely place to be. After much sole searching, goggling everything possible, and asking the experts it became apparent to me that I could not continue to work unless I moved out. Through out all of this the one certainty for me was that I would not leave my Husband to face shielding alone, my GP has supported me and I am off work until the end of June. I too feel incredible guilt at not doing the job that I love, and I have no idea what I will do as June comes to am end. It is such a difficult situation, I hope this post somehow helps,as your posts certainly helped me know that I am not alone. I wish you all the best and hope that you all stay safe and well. x

[Author]

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