Thank you for posting on the Discussion Forum.  I am sorry that you haven’t received any replies to your post to date.  My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

I hope that your husband is feeling better in the last few weeks.   With regard to the detection of light chains in your husband’s blood t…[Read more]

Dear Angela

Thank you for posting on the Discussion Forum.  I am sorry that you haven’t received any replies to date.  My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

We understand from the Myeloma XI Trial Office that all patients who were receiving vorinostat (Zolinza®) within this trial have rece…[Read more]

Hi Emma

Thank you for posting on the Discussion Forum.  I am sorry that you haven’t received any replies to your post.  My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

Unfortunately here at Myeloma UK we are not aware of any insurance companies that will provide life insurance cover to myeloma pat…[Read more]

Dear Rosie

Thank you for posting on the Discussion Forum.  I am sorry that you haven’t had any replies to your post to date.  My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

I am sorry to hear of the difficulties your dad has been experiencing.  I hope that some of his symptoms have been alleviated by h…[Read more]

Dear Sue

Thank you for posting on the Discussion Forum.  I am sorry that you haven’t yet received a response.  My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

I am sorry to hear of the skin problems you have been experiencing – although some patients do frequently report dry skin following high-…[Read more]

Hi Jan – the paraprotein level can fluctuate slightly from test to test so please don’t be worried about this slight increase. Please ask your husband’s doctor (haematologist) to elaborate at the next clinic appointment. Generally speaking the doctor will be looking at the trend of the paraprotein level over several blood tests, rather than one c…[Read more]

Hello

My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.  I am sorry that no-one has yet replied to your post, and I am sorry to read of the difficulties your partner has experienced.

I wonder if you and your partner have had an opportunity to reflect on the experience with his doctor (haematologist) or…[Read more]

Hi Ceri

Thank you for posting on the Discussion Forum. I am sorry that you have not had any replies yet. My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

The situation you describe with your husband is unusual. When patients present with confusion and hallucinations there can be multiple potential…[Read more]

Dear John

Thank you for posting on the Myeloma UK Discussion Forum. I am sorry that you haven’t had any replies to date – I am sure you will be hearing from others in the near future. My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

You haven’t mentioned in your post whether your wife is on active treat…[Read more]

Hi Susie

Thank you for posting on the Discussion Forum. I am sorry that no-one has commented on your post to date – I am sure they will in due course. My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

The haematology team at your hospital will be able to advise you on their practice. There is some v…[Read more]

Thank you for posting on the Myeloma UK discussion forum. My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

I am sorry that no-one has yet replied to your post. I suspect this is because the situation you describe with the additional diagnoses of LGLL (large granular lymphocytic leukaemia) and morphea…[Read more]

Hello Gustavo

Thank you for posting on the discussion forum. I’m sorry no one has yet replied to your post – I’m sure they will in due course; meanwhile I thought it would be useful for me to reply – my name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

As you found this discussion forum I am hoping that…[Read more]

Thank you for posting on the discussion forum. I’m sorry no one has yet replied to your post – I’m sure they will in due course; meanwhile I thought it would be useful for me to reply – my name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

As you found this discussion forum I am hoping that you have also…[Read more]

Thank you for posting on the Myeloma UK discussion forum.  My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.

As far as we are aware there is no connection between myeloma and age related macular degeneration (ARMD).  This is not to say that other patients might not have experience of both, as both are m…[Read more]

Dear Graham

Thank you for posting on the Myeloma UK forum.  My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.  I am sorry that no-one has responded to your post to date.

As you correctly note LDH, B2M and CRP are not diagnostic tests in their own right (for myeloma or any other conditions).  Instead th…[Read more]

Hi Kay

Thank you for posting on the Myeloma UK forum. My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK.  I am sorry that no-one has responded to your post until now.  I can understand that this is a worrying time for you with your mother in hospital and you being abroad.  From your description it sounds as…[Read more]

Thank you for posting on the Myeloma Discussion Forum. My name is Debbie, and I am one of the Myeloma Information Specialists at Myeloma UK.  I am sorry that no-one has responded to your post to date. This is a question that it is unlikely forum users will be able to answer.

I can understand your concern about myeloma running in the family. We…[Read more]

Thank you for posting on the Myeloma Discussion Forum. My name is Debbie, and I am one of the Myeloma Information Specialists at Myeloma UK.  I am sorry that no-one has responded to your post to date. This is a question that it is unlikely forum users will be able to answer.

I can understand your concern about myeloma running in the family. We…[Read more]

Thank you for posting on the Myeloma Discussion Forum.  My name is  Debbie, and I am one of the Myeloma Information Specialists at Myeloma UK.  I am sorry that no-one has responded to your post to date.  I suspect this is because the situation you describe with your mum is a complex one, and there are many potential reasons for the drop in her hae…[Read more]

Thank you for posting on the Myeloma Discussion Forum.  My name is  Debbie, and I am one of the Myeloma Information Specialists at Myeloma UK.  I am sorry that no-one has responded to your post to date.  I suspect this is because the situation you describe with your mum is a complex one, and there are many potential reasons for the drop in her hae…[Read more]