Dear Susannah,
I'm so so sorry you find yourself in this position. The feeling of being alone and not knowing what to do next or for the best is bewildering. Especially when you are undergoing so much stress.
I don't know what to say to help or make you feel better. But please look up The Liverpool care plan.
I believe you and your husband…[Read more]

Dear Gill
I understand why you want to be alone. That's how I wanted it. But I wasn't allowed.
I don't know what is worse being on your own, or putting on a pleasant face for those who don't want to see you miserable.
You have to experience the loss of your bestest friend and confidant, lover and carer, because with the best will in the world,…[Read more]

Hi Stewart

Venessa can contact me if she wishes. I too am struggling to come to terms with Ian's MM. The doctor has prescribed diazapan for me and I take it when I need it. It makes me feel calmer but I also believe that god will look after us. What age is Elsie?

I had a down day today, shopping in the supermarket, a nightmare. What do…[Read more]

Hi Stewart

My husband was daignosed in October at the age of 56 with MM. It has been a great shock to us. I cried continually for the fiorst 3 weeks. The doctors has given me vallium which I take when I need it. I stay strong when I visit my husband in hospital.

Do you live in Scotland as you are a hearts fan.

Maureen

Hi David

Ian is in better spirits and is eating better. His psinal wound is looking better and he is moveing his left leg and alos has movement in his left leg but his hands are weak.

I am thinking positively and we will try and have as nice a Christmas as possible. He is allowed a small glass of champagne. It will be very hard as this is…[Read more]

Hi Angie
Stumbled onto your message. We live in Dunblane and my husbnad Ian has been diagnosed with MM on 24 October. He had to have a spinal operation as his spine started to crumble when the steroids started attacking the tumour. He has had to return for further surgery to the Western General in Edinburgh as his wound is infected. He is…[Read more]

Hi Sue

I am still positive that there is light at the end of the tunnel. At the moment my husband is still in hospital as his psinal wound is still slowly healing. I am spending Christmas with my son, daugher in law and my 2 granddaughters. They have been a great support for me.

Have a nice Christmas in New Zealand and god bless

Maureen

My husand has partial paralysis as his spine started to crumble when the steroids started attacking the tumour. We do not know if this will be permanent but he was only diagnosed on 24 October and we have had to deal with the diagnosis plus a spinal operation. He had an infection in his wound and had to return for further surgery. We are now…[Read more]

Hi Sue,
Neighbours can amaze you when you least expect it.
I'm glad you have someone nearby,and hope it has helped you feel less alone.
Michael is still with you and now is the time to say what needs to be said, in order that you have no regrets. It is also the time to get Macmillan nurses involved as they are there for YOU too. Coping alone…[Read more]

Hi Tim

Thanks for your reply. Ian has had a course of CDT which didn't agree with him but he was switched to velcade with steroids which seemed a lot better but the chemo has now been delayed to help his wound heal.

Did you have an issue with walking after your spinal operation? Ian will need physiotherapy and rehabilitation.

Maureen

My husband was diagnosed with MM on 24 October after suffering with back pain since April. He has gone to the docotor on a few occasions and was referred to a specialist in July who advised him he was stiff and to have physiotherapy.He had physiotherpay for 13 weeks but he was still in pain. He then asked to be referred privately. The doctor sent…[Read more]

Hi Gill,
I had my bereavement counselling with cruse 8 months after Peter died. They have a situation in which they do not like to see anyone until 6 months are up.
The 6 month time seams to be THE most raw and painful time when it all hits home that this is real.
I cried throughout the entire series of 6 sessions but at the end felt better…[Read more]

Thank you so much for your lovely message – I'm sure you know just what a real difference it makes.
You are right – I will be out on Harry again in a few months and we will have forgotten all about chemo.
love Carol xxxxx

Hi Eve

As you may have read I am feeling better now after starting treatment and meeting my Macmillan nurse – as our pals say on here "onwards and upwards" but I am sure I wouldn't have felt as relaxed and positive as this withoutall the support received from the kind friends on here.
love and a big thank you hug.
keep well love Carol…

Thanks Megan
I'm feeling much more positive now we have got started with things. Also I have met my Macmillan nurse for first time and feel as if I can ring someone with queries without bothering doctors with little things.
love and a hug
Carol xxxxx
😀

🙂 Thank you for your lovely message – just knowing people take the time to write when they are struggling with this themselves makes such a difference
Love Carol xxxxx

Hi Liz
Thanks for that – it realy does help to know that people understand as,it's not always easy to be 100% honest with family and close friends.
Treatment going well so that's a big relief although I don't knoe if it's working yet!
love Carol xxx
😀

David,
Just to let you know that after 2 weeks of treatment it's not as bad as I thought it would be even though it's early days. Am feeling much more positive after so many kind messages – they really have given me a lift!
Best wishes
love Carol xxxxx