Thanks Joe
Lets hope you continue and have a good long run!!!
Thank you so much for the kind thoughts it has really helped me accept everything and just get on with it – there are such lovely people on this site.
Best wishes,
love Carol xxxx

Thanks Charlotte
Have cheered up a lot now after all the smashind messages.In fact, I feel a bit of a wimp when I think I have at least had a year off aggressive treatment when so many people are so ill and still waiting for doners etc.
Anyway treatment going better than thought it wouldbe sofarso good!

Love and many thanks for the"cheer"…[Read more]

Hi to you all
Thank you so much for your very kind thoughts – much appreciated. I knew it was back really by the fatigue and pain levels but we always hope for the best don't we?
Had Hickman in yesterday and will start chemo (PAD) on Monday so may not be on 'air' for a little while!

Best wishes to you all and fingers crossed that we don't…[Read more]

Hi & Thanks so much Helen

As you can probably tell by the time of my reply I am on DEX and wide awake and twitchy!
Keep well you too.
Love Carol xxxxxx

Hi Joe
Many thanks and lets keep thinking that yours is going to go on for years to come so relax and enjoy!!
I have heard from a lady in America who was diagnosed thirteen years ago and is still going strong, so it does happen.
Take good care of yourself
Love Carol xxxxxx

Hi Keith
Many thanks for the prompt reply – especially when you are going through the mill at present and over past years.
The general information is great but I suppose just hearing from someone in a similar position helps me to treat the situation in a calmer fashion too!
I'm very reticent about another transplant as mine didn't go too well…[Read more]

Dear Gill,
I am now at 14months and felt I was doing well, I was at a party with about 50 widows on Friday night and on Saturday attended a memorial service for all patients who died it Critical Care Unit,.
I sobbed and sniffed thru the entire service which was beautiful and along with others in my pew blew our noses during the loud…[Read more]

Hi guys – Thank you so much for your messages. It really is overwhelming receiving encouraging messages from you all. Thank you – I am so glad I have joined this site.

I hope this finds you all well – lots of love and best wishes.

Take care Love Kerry xxx

Hiya Wink… Thank you for your message.

You are right, it is the damage that MM causes that is the really problem! I always say that if Melv just had Cancer to accept without the disabilities that it has caused, he approach it with determination and fight with everything he had. However, as he is slowly losing 'who he is' due to no longer…[Read more]

Hi Megan – Thank you for your message.

It sounds like you have both have it tough too. I'm sorry.

I understand what you are saying about the beg of the MM journey and we are so happy and positive regarding the PP levels, it's fantastic and a step in the right direction regarding the Myeloma. However, the damage that the Myeloma has caused…[Read more]

Dear Susannah,
I can see she was particularly insensitive, but its done and she has given you the opportunity to prepare. Not many people get that opportunity, often dying suddenly whilst still hoping as I did with Peter so grasp the moments you share, to discuss all the .things you have been afraid to confront. Talk until you are horse and…[Read more]

Dear Gill,
I know how you feel, modern day society has no place for death. We all know we are going to die but no one wants to discuss it. Its the last social taboo.
I went out to lunch on Saturday with four lovely ladies from my group. I had only met one of them before but we talked non stop about our husbands, there death , our reactions to…[Read more]

Oh Sue… :-(. I know that I haven't spoken to you before, I'm quite new. It's also my partner who has MM.

I often wonder *how* you do cope and accept that news??!! If I can be honest, I don't have any advise to give – other than love each other and make this time more special than you have any other.

I am so very sorry Sue…

Thinking…[Read more]

Here is my two pennies worth.
Peter had had a double heart bypass 8 years before his MM. Stress off the richter scale as daughter had booked her wedding in New York which co- incided with his op.
Fast forward 8 years and diagosis of MM. I knew in my heart of hearts because of how poorly he was at diagnosis there would be little chance of him…[Read more]

Thank you Mavis – I tend to agree I think. If you have MM..you have it regardless!

I hope this finds you well – take care xxx

Hi Eve

Thank you for getting back to me with that. I have read lots of literature and have sort of worked it out myself ( i think). I understand the process of MM and what it all entails – I'm a bit of a researcher and send myself crazy looking up this and that! I also ask for copies of the information and always take my note book and pen and…[Read more]