Dear Gill
There is a kind of Limbo we live in until the funeral, when it all seems so unreal and like a dream or nightmare. This is the time we all knew was going to happen but wished with all our heart we could put off.
I had a humanist funeral for Peter and some friends who are regular church goers commented that it was the best service they…[Read more]

Dearest Gill
I am so so sorry for your loss.
There are no words to help at his moment in time, other than I am thinking of you.
Stephens passing was traumatic for you but in time you will put that part behind you and remember the good times.
Suffice to say he is now out of his suffering and yours begins in a different way.
Strength will…[Read more]

Hi Cathy

Just a quick message to let you know that we are thinking of you both and just hoping that Ivan "turns the corner" soon. As everyone keep saying we really all different and my husband remember well the panick setting in as day 28 in isolation, feeling rotten and having constant infections conditions with absolutely no improvement in…[Read more]

My dear Gill
Stephen is no longer in coñtrol, MM is, how difficult to see him go downhill so fast.
Somewhere inside is the man you love,and he will be equally afraid as you are. You need all your family around you at times like this to remind you to stay in control just a little longer.
Once they have made him comfortable and possibly sedated…[Read more]

Dear Gill.
I am happy your still able to laugh at life.
Might I suggest that you seek a Macmillan nurse now. they really are amazing at the pain game.
They come to the house it is there job to ensure Stephen is pain free. But not so out of it he cant communicate or join in and argument. I found the support amazing and the products they supply…[Read more]

Dear Gill and Stephen.
What can I say to ease the heartache I know you are feeling?
There are no words that will make the journey any easier, or less painful
Niether of you can prepare for what life has in store for you.
But with what ever time you have left to love each other, talk talk and talk somemore.
Dont leave anything unsaid, dont…[Read more]

Hi Cathy
Sorry I´m rather late in reading your post and am really sorry that you are feeling so worried – often it´s hard for those who have to watch loved ones go through this process.
It´s quite normal to feel rotten for a while I´m afraid but at least it´s making the cancer cells feel rotten too so it´s not all bad. I was really poorly with…[Read more]

Hi Paul
So very pleased to hear that you have had your STC and can´t believe they let you loose after only sixteen days – fantastic!
Hope your taking things easy and building yourself up – only once a week to the disco for a while I´m afraid.

Take good care

Very best wishes

Carol xxx

Yipee!!!!!
So pleased for you both and thank you so much for sharing it with us all. It really helps to boost us I am sure to hear such super news.
Have a lovely trip.
Best wishes
Carol

So glad to hear that things are going well.

Take care and very best wishes

Carol

Hi Ange
Just wanted to welcome you although I am so sorry that we all have to meet this way. I was diagnosed in 2005 and after chemotherapy and stem cell transplant I have recuperated quite well and am back doing most of the things I used to. Hope this gives you some encouragement.
This is a great site with such lovely people who are always…[Read more]

Hi Dai,
Happy days. I seem to recall that when Peter was admitted as an emergency!! He had similar experiences.
What would they have done if you were incapable of giving them all the meds you were on? Worrying.
Thank goodness you survived the poor quality care. Makes you wonder if you should have stayed at home and called out someone.…[Read more]

Oh dear Dai
In the wars again. Hope they can fix it for you. Been away again for a while and haven't looked in in ages .
Wishing you a speedy recovery
Minx

Dear Gill,
Your in my thoughts and I know you will find the strength to take you through
Whatever life has to throw at you. Pm me if you feel up to it.
Min x

Dear Teresa. And Judy
I am so sorry to hear of the passing of your husbands.
I know it is no consolation, but I am sure you will agree with the thought that they have both fought long and hard and are are no longer suffering.
Its those who are left to grieve who suffer now, a pain which is indescrbable.
The dark tunnel you both now find…[Read more]

Hi Mike

I remember that feeling of limbo very well. I think a lot of it was shock in my case and I used to feel sick with worry for a week before every appointment with my specialist – as things settle down though and we got to learn more and more about what was going on we got into the routine and things seems less chaotic.
Please don´t…[Read more]

Hi Beverly
Sorry that I am late in replying but a very big and warm welcome although I wish we could have met in a different way.

I was diagnosed with smouldering myeloma in 2005 and did not require treatment (other than for anemia) until 2010. After chemo and a stem cell transplant I am still getting stronger every week and am now…[Read more]

Hi Mike

Sorry you have had to join us but a very big welcome to you (and your supporters). I´m sorry that I don´t know anything about carrying etc. but did just want you to know that I was diagnosed in 2005 at age 54 and after chemo and a stem cell transplant I am still horseriding and have just come in from painting the outside of the h…[Read more]

Hi
Thank you so much for taking the time to let us know. I´m not in that position yet as my first is still holding out but it had been worrying me about what it might be like when or if I have to have another.
Hope all goes well for you both.
Love Carol xx