Hi Andy, Proff Jackson is a really nice approachable down to earth man. Tell them at the desk that you are on his list. Or one of t hem may pick up your notes.
There are a few blue badge bays near to the entrance, and you will be on the ground floor that you enter by. At the rear of the hospital. Follow signs for the Bobby Robson unit from…[Read more]

Heaven has gained an Angel,and we have lost a very dear friend. Dear Bridget has been in my thoughts a good many times lately. Imagining how her husband and children are coping with the reality of an event which seams surreal
It stirred memories that I would rather forget and tears that she would have consoled me for shedding.

Her suffering…[Read more]

Hi
Congratulations. I´m so very happy for you and it´s great to hear such lovely positive news.

I don´t have any experience of withdrawal but will keep my fingers crossed that you don´t have any!

Hope all continues as well as this and better!

Best wishes
Love Carol xxx

Welcome Alethea

So sorry that we have had to "meet" you like this and that you are having such a difficult time.
I do hope that things get a little bit easier for you soon. I think you will find this site very helpful and the people are very kind and understanding. Talking to other patients who understand the condition and the ups and downs…[Read more]

Hi Andy

Sorry your having such a poor time of it. Letes hope that your meeting goes well with Dr Jackson.

Just a suggestions but I bought a back support belt (only the cheap 6.99 version) from ebay which has helped me a great deal. It has little magnets for the small of your back but I´m really not sure what they are there for. Anyway, it…[Read more]

Myeloma uk produces a very good diary that you can record all in regarding treatments side effects etc and would urge you all to acquire one,they are available at no charge, but don't be mean, make a small donation .you know every penny is well spent.
Min lying in bed with a minor irritating illness

Hi Paul

Thanks so much for taking the time to reply when I know your feeling under the weather.

Sorry your feeling tired and missing some hair but one thing ALL my team said in St James´s was that they were always quite pleased to see these side effects and the more severe the better (especially the hair) as they found it happened when the…[Read more]

Hi Paul

Just hoping that things are going a little better and that your not feeling too rotten.

Thinking of you lots with fingers crossed for you both.

Best wishes

Love Carol xxx

Hi eve
peter was having platelets almost every other day- of and on -eventualy they gave him an injection that helped.
He never had any with his first sct, but by now you know every one is different. If he is getting them its because he needs them. It all takes time,and the worrying does not stop. But think posative……..
Min x

Dear Siobhan
Thank you so much for making such a brave effort to come and tell us about your Mum. To say she will be greatly missed is such an understatement as you, better than anyone else will know.

I think you must be very much like your lovely Mum and I know for sure that she is very proud of you. Keep listening as I know she will keep…[Read more]

Dear Siobhan
I am so sorry for your loss.
Your Mum was a wonderful lady admired by all who ?met? her online at mm uk. I am deeply saddened to hear of you and your families loss of this lovely lady, who made the journey with mm with dignity and humour, and a very very caring atitude.
Your Dad must be devastated, and I wish you all the strength…[Read more]

Our Lovely friend Bridget.
I am saddened to read the news from her daughter, on Bridgets face book page. She gave me such wonderful support from the moment Peter was diagnosed and after he passed away. She will be very sadly missed

Hi Kay
Sorry for the long delay in reply but only just popped back on the website as we are staying in Spain for a couple of weeks to see if it helps the pain I have in joints and bones.

Glad to hear that slowing down is helping. I don´t have to go out to work now but I do look after quite a big house and two VERY big horses. My husband is…[Read more]

Hi Liz
So sorry that you have had the news that all of us who are post transplant dread getting . it´s back. I can only imagine what a blow this is to you both but you sound pretty practical and a great coper.
Hope the treatment goes well and that you have better news soon.
Best wishes to you both
Carol xxx

Dear Dai and Janet
Now I understand you.
As directed I watched your 'The Wish' yesterday. I now know exactly where you are coming from and hopefully that is the same place as I am going !
I believe it and thank you. Will watch it again tommorow if I can find the time. Off to a new quilting class. Love it. Just the thing to pass the time in…[Read more]

Dear Stephen
I understand a little of the pain you are going through. Grief if extremely tiring and its natural to feel exhausted as your brain wonders from one thought to the next in a nanno second trying to make sence of the unfairness of it all.
Please don't forget your children are grieving too. There shorter lives have always only ever had…[Read more]

Its called barrier nursing .Eve. and you must insist on it.gloves plastic pinny and mask. And if that had been adhered to in Peters case he might just be here today. So don't let them get away with it.
That's my drum banged . Only do it when I'm riled up.
Which I wasn't because had a briliant few days
I'm now going onwards and upwards to…[Read more]

Dear Carol,
Im so sorry for your loss, I KNOW exactly how you feel as its eight months since my husband died of mm, it was also very sudden and unexpected. Losing your husband is like being torn in half, I had been married for 40years and to suddenly be without him was heartbreaking.
My husband had been ill with mm for two years and those two…[Read more]

Dear Dai
Yesterday I drove home,and decided to cut actress country and drive through Nottingham forest, you were inexplicably on my mind and I kept thinking. If I knew where you lived in notts I would have called in to see you. You must have been typing you post at that time. Bizzare

Instead I went on a journey to nostalgia to an RAF station…[Read more]

I am in the countryside looking after two grandchildren two cats, five dogs and two chickens one of which is broody orpington sitting on some bantam eggs!
The daughter is in Dubrovnic with hubby and friends. Finally the sun is shining been here a week tom and its rained every b day.
Finally the sun is shining and I am looking forward to…[Read more]