CarolBradley1 replied to the topic Newly diagnosed Monday at only 39. in the forum Newcomers 12 years, 6 months ago
Hi Antoinette
I am really sorry that I have to welcome you to this site – but a very sympathetic hello anyway.
I understand that you are absolutely shocked to your core but you have found here a very good site where you will find lots of the information, help and support your going to need.
If it helps, I was diagnosed with this rotten…[Read more]
Min started the topic moving on. in the forum End of Life and Grief 12 years, 6 months ago
I thought I would let you know how life is after caring for my husband who died 8 months ago from myeloma. I know I moved away from contributing to the site but I have regularly,checked in to see how you are all doing.
I started to go to cruse bereavment counceling a while ago.
Its tough. Exhausting, and interesting.
I developed a strange…[Read more]
CarolBradley1 replied to the topic New – but feel I know you already! in the forum Newcomers 12 years, 6 months ago
Welcome Rosie
Wow! you sound as if you are a real seasoned campaigner – after going through so much I can understand how you might not want to go through another STC – not much fun I do agree.
Glad to hear your coping with everything in such a brave and positive way – you must have picked up lots of information and experience along the…[Read more]
CarolBradley1 replied to the topic New to the site in the forum Newcomers 12 years, 6 months ago
Hi Vicky – that´s the very question I would like to know the answer to.
I have decided that because the cancer didn´t develop fully until I was 52 after my stem cell transplant in February it might take another 52 years to come back again!!!! (Well one can dream).
Please let us know if you do get an answer.
Cheers
Carolxx
CarolBradley1 replied to the topic Newbie in the forum Newcomers 12 years, 6 months ago
No Problem Gail I think your very brave to be coping so well.
Take care of yourself too and try and have a little treat every couple of days – even if it´s only a chat with a girlfriend or doing your nails!
Love Carol
xxx
CarolBradley1 replied to the topic Newbie in the forum Newcomers 12 years, 6 months ago
Hi G
So sorry you had to join us but there are lots of good people on this site who have lots of experience of just about every emotional and practical aspect of coping with MM.
It´s nice to know that you can always come on here and ask/say the things that maybe arn´t quite so easy with family and friends. I really have found it a real s…[Read more]
CarolBradley1 replied to the topic New to the site in the forum Newcomers 12 years, 6 months ago
Hi and a warm welcome to you both, although I´m really sorry that you had to join us.
Your quite right to be positive there are lots and lots of new and exciting things coming on line and much more developing.
I had my sct last February 2011 and I won´t say that recovery has been quick I am certainly improving all the time. Today I have b…[Read more]
CarolBradley1 replied to the topic Sue M's Transplant in the forum General 12 years, 7 months ago
Thank you so much Eva for letting us know.
Could you send her lots and lots of love and best wishes and let her know we shall be thinking of her over the next couple of weeks and sending cybernet "hugs". Hope all goes well as possible
Love Carol xxxx
CarolBradley1 replied to the topic Facebook in the forum General 12 years, 7 months ago
Hi everyone 🙂
I do hope you will understand if I say a big blanket THANK YOU for the lovely replies I have received. I have tried to find all those who have contacted me apart from Andy (will try today). I don't seem to be having too much luck but have to admit it could be that concentration is not really up to much as I am struggling to…[Read more]
CarolBradley1 started the topic Facebook. in the forum General 12 years, 7 months ago
Does anyone use Facebook?
I don´t go on much but do find it really useful for sharing photos etc.
I don´t really think I am using it properly either but just thought it was worth asking.
Best wishes all
Carol xxx
ps I am on Facebook just look up Carol Bradley and I live in Halifax
CarolBradley1 replied to the topic Keeping up appearances in the forum General 12 years, 7 months ago
Hi Helen
Having been through exactly the same as you last February I really do sympathise – the treatment really does dry your skin out and the lines look as if they are there to stay. However, I can honestly tell you they will go away but you might have to work at it a bit.
I felt very frail in myself but I did try to eat as well as…[Read more]
CarolBradley1 replied to the topic Newcomer… in the forum Newcomers 12 years, 7 months ago
Hi Eve
Have been lucky enough to spend the odd few weeks in Spain when well enough so have not been as active on the website as before.
Now I am back home I will keep popping in.
Hope you are keeping well and things are not too bad.
Best wishes
Love Carol xxx
CarolBradley1 replied to the topic Newcomer… in the forum Newcomers 12 years, 7 months ago
Hi Tony
Thank you for your lovely reply – yes will certainly stay in touch – please let us all know how you are getting along.
If you need any practical advice or just need to talk there are some lovely people with lots of experience on this website. I found at times I had questions that seemed either too ´silly´¨ or plain daft to ask my me…[Read more]
CarolBradley1 replied to the topic hi in the forum Newcomers 12 years, 7 months ago
Hi
Just wanted to welcome you to the site although I am so sorry that you have had to find us because of bad news about your nan.
She is so lucky to have you and I get the feeling that once you have had time to absorb some of the shock you are quickly going to find your way around all of the information that is available to us.
I know it is…[Read more]
CarolBradley1 replied to the topic Another newbie in the forum Newcomers 12 years, 7 months ago
Hi
Only just catching up with posts but wanted to say a belated welcome.
Hope you are both coping and coming to terms with everything (and there is such a lot isn´t there?).
It has been such a relief to be able to talk to people in the same boat – they are so supportive and sensible that it makes even the most difficult times seem much…[Read more]
CarolBradley1 replied to the topic New bird(ish) in the forum General 12 years, 7 months ago
Hi Kirsty
Sorry that I am only just catching up on the latest news on the site and so didn´t welcome you earlier. Anyway, hope things are sinking in a bit now and that you are being well looked after.
Keep calm about the transplant (easier said than done I know). As others have said not pleasant but mostly it´s just tiring and you will be v…[Read more]
CarolBradley1 replied to the topic Blood results in the forum General 12 years, 7 months ago
Hi Jean
I know how worrying this can be but can only hope that they are sorting things out for you about the scan.
I don´t have much else to add but just wanted to know I wish you well and hope things improve soon.
Love Carol xxx
CarolBradley1 replied to the topic Another 3 months in the forum General 12 years, 7 months ago
Hi David
Just read your good news and am so pleased for you – phew what a relief! I bet you feel like a new lease of life has begun.
Thank you for letting us all know and so good to hear that you are not in pain. Long may it continue!
Best wishes
Carol xxxx
CarolBradley1 replied to the topic Newcomer… in the forum Newcomers 12 years, 7 months ago
Hi Tony
Just wanted to send a word of welcome although so sorry we have to meet here.
You must feel pretty rattled at present so hope this helps. I was diagnosed many years ago (2005) and after chemo and stem transplant last year I am now doing really really well.
Keep calm, keep your chin up – I was on the myeloma trial too and it does ensure…[Read more]
Min replied to the topic Board activity in the forum Off topic 12 years, 7 months ago
I think debs hit the nail on the head with regards to popping in when your i'll and need the support, but its a different kind of support that people in remission need in order to move forward.
But I look in regularly can't help myself, just need to know your all OK.
Cant just shrug of my cyber friends and confidantes
Similarly saddened to…[Read more]