Hi
Just wanted to welcome you to the site although sad for you and your Dad that you have to be here.
Hope things improve soon.
Thinking of you and hoping for the very best.
Love Carol

Hi Caz1
Sorry to have to meet you here but did just want to say Welcome!
Boy, you really are having a rotten time of it all at once and must be having quite a lot of pain.
Hope the chemo goes well and your leg mends quickly too.
Thinking of you
Love Carol xxx

Hi Janet
So sorry to hear your news – we all dread it and wonder how we will react when it comes.
Things have changed so much in five years and perhaps you could try lenalidomide or velcade – there are quite a lot of new things now.
Anyway, you try and look after yourself and make an appointment to ask your ever growing list of questions . I…[Read more]

Sorry to hear your news Bridget – boy you have been through the mill and you are always so brave and bright.
Had my MRI last week as am having a lot of pain and weakness in one leg but they say it´s usual wear and tear and slipped disc damage. I am hoping that it leads to nothing else but am just relieved not to have heard anything worse at…[Read more]

Dear Michelle,
I am so very very sorry for your tragic loss.
It is an absolute tragedy that one so young should have to suffer this goddamn illness particularly when he had a young family to love.
You will have some difficult times ahead, and frustrating feelings too, you will survive and look back in the future at the happier times when he…[Read more]

Hi Dave
Sorry can´t help with your specific question but did just want to welcome you to the site as we haven´t met here before.
Sorry that your pp is on the rise but over the years prior to treatment (I have had one SCT) my pp fluctuated quite dramatically usually when I was under stress and as soon as things settled down at work etc. so did t…[Read more]

Hi All
Hope this finds you all as well as you can be.
Strange how chemo changes how our hair is. I ought to update my photo as this one is the "before" and it has now come back curly which makes me look as if I have had a perm if there is any damp at all in the air!
Anyway, I might keep this to encourage me not to chop it off when I am fed up…[Read more]

Hi Vic
Welcome – glad to hear from you but sad that it is under these circumstances. I too have a problem with discs and they are monitoring to I will be interested to hear anything too about this procedure.At the minute I am managing with Tramadol with the occasional top up with a little bit of oramorph but even still I have pain.

Best…[Read more]

Hi Terry
I was on the machine for two days and with the needles in each arm and having been asked to lie flat ant to try not to move around and disturb things I couldn´t do much other than snooze and chat to lovely hubby in between.
The only difficulty I had was a lack of calcium but they gave me an injection and a couple of glasses of milk…[Read more]

Sorry to hear your unwell David. I was told that Kiwi fruit has lots of things in it that helps – anyway I eat one every day and since I started have escaped the usual winter colds etc.
Hope you feel better soon.
Love Carolxxxx

Lovely photo!
Love Carolxxx

Nice to see you at last Mavis, five loarge dogs in the countryside is not difficult as there are no leads and most of them are well behaved and non of them is under 7yrs old. Its mostly about letting them see who is in charge of the pack. In my cse that means my 7yr old yellow lab as she is on the ball.
It was rather funny as all the others…[Read more]

Sorry for kidnapping your post but how is Slim these days Eve? did you ever get the holiday you both deserved?
I look at this site every day but in such a short time things are moving so fast that I can no longer keep up.
That is progress for mm but widows brain for me.
I notice that you still struggle to keep his weight up. Never mind about…[Read more]

Dear Dai
P3 or Not P3 that is the question!
I know its not easy but you need the P to be super concentrated so try and drink less so what you do produce is more toxic. so to speak. Then after 24 hrs you can go back to your normal x litres a day. forgot already what it should be.
Hope its how you want it when you do manage to produce but…[Read more]

Last one tonight what a shame doesnt seem to have been on long?
I read War Horse last week and saw the film and can recommend both .
Min

David I have had my granddaughter staying with me for the past week, and we all know how full of germs these little ones are.
She had been coughing non stop in the night keeping me awake. She also has by way of explanation terrible exzma, so rubbing vick on her chest is out of the question. So tried this and it became 'Silent night
Rub copious…[Read more]

Hi Mavis…

Thank you…I will ask for one of those x x

Hi Zoe…

It's tough isn't it?! Melvin, my partner is only 38, so young! How is Dan? He sounds like he is having a tough time of it.

Melvin was diagnosed with a solitary plasmacytoma of the spine in December 2011 and had radiotherapy that helped. He is currently in hospital with multiple fractures..now on the ribs…and is being hit full…[Read more]

Thank you everyone for your lovely kind thoughts and words of encouragement. It's such a tough time for us.

I hope this finds you all well. Please keep in touch x x x

Thank you Bridget,

I hope you are feeling well. Yes, Melvin had radiotherapy for the plasmacytoma on the spine and is having infusions every 4 weeks….however, we are not sure what the next plan is now that he has multiple fractures. He is in hospital at the moment on Iv morphine and antibiotics and the Dr's are having a MDT meeting later…[Read more]