Hi Mavis…Sorry for late reply.

Thank you for your message. I hope you are feeling well.
Melvin is also having bone strengthening infusions every 4 weeks…but he still has these new fractures. His levels seem to have spiked a little but not out of control. He is still in hospital on IV antibiotics and morphine but is having more movement…[Read more]

Hi Tina
Glad your going on the trial as you will be monitored really well and the medications used seem to be having a good impact on the MM for most people.
Regarding the side effects of the treatment and SCT – well, like you I was really worried about the hair loss all the time up until the SCT – my poor husband spent a BOMB on having a wig…[Read more]

Thanks Dai.
I did a big 1st yesterday and went out to the police club to meet my old coleagues.
First time since I left to care for Peter 11 months ago. I felt terrified but got thru it and now waiting for the next hurdle what ever that is. The truth is I now know nothing will ever be as bad or difficult as saying goodbye to Peter.
I have a…[Read more]

Bridget I love this series and have been too busy of late to see the past few weeks, but they are saved on Sky,
Cant wait for the weekend when the family go home and I get to catch up on Eastenders too.
Min xx

Ah Mavis,
Peter often used the expression cant take it with you and contstantly made sure there was nothing left to take LOL
HIs attitude was Whats the point of working for it if you cant enjoy it its not there look at it on the bank statements
I was never of the same opinion and was constantly saving for the rainy day.
These days I think…[Read more]

Hi and welcome
I think everyone has said it all at present but just wanted to add my very best wishes to you.
This is such a frightening time and my heart goes out to you having been through the mill myself since 2005. I have had the chimo and SCT and at the moment am enjoying a period of relative good health so hang in there! There is so much…[Read more]

Hi Tina
So sorry that we are meeting because of your bad news you must be reeling at the moment. At least you have come to the right place for some support – ask anything at all as anything that worries you is important.
I had my SCT in Feb of 2011 and although my recovery has been slower than I would have liked I am sure that is because I am a…[Read more]

Hello Kerry
Sorry you have both had to join us and that your having such a rotten time at present. I think everyone has said just about everything – thats the big thing about this site, having lovely people share their knowledge and practical advice is such a support.
Hope that the pain is now getting sorted out and that things are a bit calmer…[Read more]

Oh Dear Bridget, back on the band wagon again.
Dont worry today is a bad day, and bad news is a bitch but tommorow is a new day and brings a new challenge.
Once you have digested the results, you will pick yourself dust yourself off and start all over again as the song says. But guess you dont feel much like singing! Have a large one of what…[Read more]

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HiGarry,
I wonder if your sister is on strong pain killers? As they can cause strange things in patients if they are too strong.
It goes without saying she must be suffering from anxiety too, is she on any anti depresants that are interacting badly with her myeloma drugs?
I suggest that you ring her consultant, tell him you wonder if you…[Read more]

Bridget today I went sledging on a nearby hill wth two grandchildren and my 3dogs' and emma's 2dogs.
It was wonderful not too cold but I got my bum very wet when Made to sit on one of those tiny bum shaped boards!
Very memorable for me and the kids,particularly as my old old dog was the only one that wanted or could pull the sledge…happy…[Read more]

Made it with minutes to spare. Three dogs and me and beat the snow but the is now a coving of about 2 inches better be gone by the time I go home

About to get in the car and head off south to Daughters Hope I dont hit the snow on the way . My plan is to get there before it

Min

ok Chrissie
check your junk mail box have sent u a message
Min

Chrissie
I did not eat for three weeks and sleeping was not on the menu for me either.
But now I am back to normal eating habits and putting back the weight I lost. Sleep is hit and miss but I normally take my tablet to bed ( computer tablet that is not a sleeping tablet) and lie there till I drop off fortunately it turns itself off when not…[Read more]

Hi Eve
When Peter was on velcade, his first few infusions were long days waiting mostly for the pharmacy to produce the product.
But as time wore on it got quicker and quicker, we found making an afternoon appointment meant that he did not have to spend a whole day there.
As time wore he he changed the times of his appointment to later in…[Read more]

Dear Chrissie
I understand entirely how you feel. 53years is a lifetime, and cannot be forgotten, or pushed to the back of your mind. Peter and i were married for 40years and its the strangest thing not having him here or knowing he is never coming home.
Some days I am fine and others without rhyme or reason I am down. Almost every day I am…[Read more]