Hi Gary and welcome to our very exclusive club.
i can identify with all you are feeling and how your sister is responding.
Its just a thought but?. I can remember the time my husband was on Thalidomide and all the other drugs to go with it.
If you sister has previously been a well person the quantity of drugs can be overwhelming, and if in…[Read more]

Hi,
I know exactly where you are. I cried while I put up the tree and looked to the cards for a long time, not wanting to sign just my name:-(
My grandchildren are a long way away and they will never see my tree! so dont know why I bothered. I just wanted to prove to myself that i could do it.
But I feel right now I am going backwards not…[Read more]

Hi Eve
Please make sure you get a referral for that tooth out for slim. Regular dentists are not up to the job in as much as you need to go to a dental hospital or similar as Peter had the same problem and there is a very high risk of osteocronosis following tooth extractions when on all of the meds slim is on especialy the bone stuff?. Forgot…[Read more]

Hi Susanah and Michael.
OMG you must have both been devastated at this news, but perhaps by now you have had time to digest it and got over the shock and realised that this is not the end.
If Michael is up to it you must enquire about whatever else is available. On the plus side the fact that the numbers have not gone up. Is a good thing…[Read more]

Hi Eve
Briliant news and especialy at this time of year. At Tom would say Onwards and Upwards. sounds like the finish line is in sight and do hope all your and Slims dreams come true for Christmas.
Im off out for dinner with son before he leaves again so time for a few tipples it would be rude not to especial when Im not driving!
Love Min

Hi Sarah
it sounds like you timed out!!! go into your post and edit it and add what you lost then you can take your time How are you? Im feeling down today, peters birthday tommorow so sad.
Love Min

Hi Jenny,
I know where you are coming from, having been where you are in the past.
My husband was being treated by a so called kidney specialist who saw him every week took blood tests every week and and some point, when He told he her he had a dreadful pain in his back that co-incided with with a very elevated calcium reading in his blood test,…[Read more]

Hi Bridget,
A very dear friend and colleague of mine was dying of breast cancer and secondary brain tumour and she told me a few months before she died that she worried about how her husband was going to cope with organising her funeral.
I suggested that she should take the worry away by arranging it herself and she thought it was such a good…[Read more]

Hi David
Im pleased the service went well. That final goodbye is such a whirlwind I cannot remember much of Peters funeral but I do have a full copy of the humanist service we had.
In my case I chose a humanist who purely by co-incidence happened to be an ex chief Inspector in my police force.
He spent almost 4 hours with us asking a million…[Read more]

Big ELEPHANT over to you with ANT
Min

I think the answer Debs is to talk to the hospital and better be safe than sorry, Im sorry your feeling so awful but its that darned time of year when everyone is run down but being run down after MM is something to take professional advise on.
I hope it clears up soon and your able to get on with your life
Love MIn

Dear Gina,
I am so sorry to hear about your Mum, I imagine your all feeling quite numb. I hope your happy memories will take you forward without too much sadness. You are very lucky to have had her at home and I am sure she was very grateful to spend her last days in your company.
Love MIn

What a pair of smilers Tom he is good enough to eat?
Min

Peter had stage three mm. This was determined by the following scale.
At diagnosis his light chain readings were five thousand plus.
He had kidney damage, he also had bone damage to four of his vertibrae's
Stage one is just mm with no bone or kidney damage
Two mm with either bone or kidney damage.
Throw in some pulminary embolisms and a…[Read more]

Sounds like they are getting the message Eve, next time no doubt it will be spot on!
Do you remember the days when you got a prescription from your Dr and you took it to the chemist? not Phamacies in those days.
One man measured out and mixed up your medicine and counted out the tablets by hand and He wrote the label by hand.. you waited about…[Read more]

I used to hate christmas and when anyone asked what I wanted I always said to cancel it. One year Peter was in the Falklands Emma was off somewhere hot and Tony was as sea and I was working . so about as cancelled as you can get. I changed my mind after that.
A few years ago now we decided to go to the Maldives for Christmas. We didnt buy gifts…[Read more]

[b]Subtropical [/b]as in very very hot?. as opposed to what it is in the north east.. Very very cold!
CAL for the next player
Min

Mine is DETERRENT leaving ENT for for you
Min

Thanks for the thread Dai /Tom
I live in North Shields. Born in 1951. Peter was born in 1952 Like Gordon and he made it to 58yrs (my toy boy) who suffered for 2 and a half years before being overcome in August this year.
I dont know how I would have managed without the support of my friends on here
Love MIn