Hi Bridget, Tony doesn't have any children nor wants any so will have some quality mother son time 🙂 when he is not at work.
I rang my gp today to see if I can stop taking the tablets as I feel so much better but seems THE REASON I FEEL BETTER is because of the tablets and need to take them for 6 months ugh..?. But if they make life more…[Read more]

Try this
Hydrofoil:-)
Min

Can I have a go??

Nosegay

Min

I have to say Debs you look fab with your bald head, cant remember the picture that preceeded this new one but hope you feel as well as you look
love
Min

Dear DeeDee
You have arrived at the right place for help, welcome to our merry band all of whom would rather not be here, but we help each other with advise or just by lending an ear when you feel down.
Dont despair, the illness and the medication will make him feel rotton, but once he responds to the medication and they get his problems under…[Read more]

I got no problems at all!
Min

Tina I envy you, I cant dive but used to love snorkelling in the Maldives our favourite haunt before peter took ill. We did Egypt a few time too and loved that nearly as much.
Like you I am a little apprehensive but have to 'dip my toe in the water" some time and really do need a break. It being Dubai and Tony working there is a bonus he is…[Read more]

Hi Craig
I looked after my husband and carried on working at the beginning of his diagnosis and I know how hard work it is even when your employer is trying to help you hospital appointments and the odd day when I didnt want to leave him as he was so ill make it ver exhausting for YOU.
I applied succesfully eventualy for a disability living…[Read more]

Hi Bridget
The very best of luck to you when it starts, I hope it doesnt have too many bad side effects and you can get back to living normaly again. Take CAre
Love
MIn

Good luck to you Debs ands well done in advance.
Your post caught my eye because Peter and I used to live in Piddington. and drove thru West Wycombe to get anywhere in particular High Wycome where our daughter was born and Peter was posted in the RAF so it was like a blast from the past seeing it written down.
Hope you dont mind my going off in…[Read more]

Hi Mari
So sorry that you have had such an awful shock. I had a similar one a few years ago and then it went down again after a couple of months. At the time I personally put it down to the shock at the loss of my son in law in a road traffic accident (aged only 32 and Daddy to a little boy aged 5)but who knows with MM? – not sure even the…[Read more]

Hi Terry and welcome although I´m truly sorry that we are meeting here!

You really have been through it I´m afraid haven´t you? I was going to mention Revlimid (which seemed to work ok for me apart from the side effects and it brought my paraprotien level down prior to SCT but I have just read Scott talking about it to you. Might be worth as…[Read more]

Hi Ted
So glad to hear that you are continuing in fairly good health – long may it continue!
We live in Halifax and I am beginning to think that it´s going to rain forever here!

Take good care of yourself.
Love Carol xxxx

Thank You so much for responding to my request for somewhere to be able to chat without feeling negative an guilty.
Like you Sarah its all a bit too raw at the moment, and my grief like yours is tinged with anger that some people are still drawing breath when my dearly loved husband is not. Peters Father is a typical example of this.
We will…[Read more]

Hi Sarah
Dont beat yourself up, the IF word is the biggest little word I have encountered .
Peter actualy was on Velcade but it stopped working. I keep asking similar questions about the next best thing but I am slowly coming to understand that we have not a minute longer on this earth than the grand master has planned for us.
The timing…[Read more]

Please accept our sympathy and very best wishes at this very difficult time.
Carol Bradley

Dear Julie
I am so sorry that your mum has lost her battle with this dreadful disease. I hope you take comfort from the fact she was able to achieve her last wish and die at home. May she rest in Peace now she is free of pain and discomfort
Love MIn

Well done Nettie brave lady
Min

Its under General with the title Free light chains increase after sct
Sharpy can be found under her name and its her last post I believe spelt it wrong above sorry
Min