Hi
MySuch a relief to hear there are others out there. Took my grandchildren shopping with me today as their teachers had closed the school for a training day. My four year old little grandson spent the first 10 minutes trying to negotiate how many items I could buy before we went to McDonalds and when I wouldnt play that game tried to negotiate…[Read more]

Hi Nadine and welcome
Hope this helps. I had my STC in Feb of this year and although I can´t say recovery was as quick as I would have liked I am now in remission so I can´t ask for more.
I do get very tired but on the other hand that could be because I look after three horses every day, do all the housework and cooking and shopping, laundry e…[Read more]

Hi Amelie
Sorry to reply so late but I have only just read this. I had my SCT in Feb of this year and yes, I am FED UP with my itchy back and my medical team see to think it´s to be accepted – just the result of the Melphalan and resulting very dry skin.
However, I´m going to investigate eosinophilic folliculitis further and see if I can get s…[Read more]

Hi Paul and welcome
I am on the Myeloma 11 trial with Revlimid. Hope this helps – I had my stem cell transplant in February and although I haven´t found recovery a swift process (I´m a horse rider and sailing kind of person so I´m sure you understand my lack of pacience!) my paraprotien level is now 00. Basically this means I am officially in…[Read more]

Dai,
You made me cry, mind you so does everything at the moment.
I thought I was prepared for all this.
How wrong, the reality is far worse than anything I imagined. Cannot motivate myslelf. Cannot sleep, cannot do much of anything and slowly going round the bend as cant remember much of anything.
Given that this darned cancer is incurable,…[Read more]

Dear Min

Please don´t be silent. Not only would we miss your kind, common sense approach you might just miss us too! Having been widowed I do know what a help friends can be when your going through such a traumatic time so pleae do make the most of us.

I´m really glad that the funeral went well – what a comfort for you all.

Try to t…[Read more]

Hi
I had my SCT in Feb and the last three months I have been back on Revlimid. In addition to the usual symptoms you mentioned I have felt quite strange at times. I describe it to my husband as being like a goldfish looking out as everything seems rather vague and distant. I have also had some worrying short term memory losses and there are…[Read more]

Hi Bridget
Thanks so much for letting us know how you are getting on. I often think of you but don´t want to pester.
Sorry you are suffering with the pain and just praying that they get on top of everything for you soon.
Prayers and very best wishes are with you
love Carol xxx

Hi Ivan – what fantastic news. I don´t understand all the "ins and outs" but I do know that such a drop indicates that they have the cancer on the run!
Best wishes for continued good news.
Carol xxx

Hi Keith and Helen

Luckily I didn´t have any problems like yours but I just wanted to send you my very best wishes as I know how under the weather you both must be feeling at present.

Keep your chins up – had my sct in Feb and for a little while wondered if I would ever feel stronger but yesterday I rode my new horse and cleaned lots of mud…[Read more]

Hello Graham

Just wanted to extend a very warm welcome to you. Seems we were diagnosed in the same year but I only had my stem cell transplant in Feb of this year and after further velcade am now in remission.

Good luck with the Harvest and very best wishes – hoping that the GMX has produced lots of the little wrigglers for future…[Read more]

Hi Aileen
Just popped into the site, saw your post and wanted to say welcome but really sorry that you find yourself needing to join us.
I have found this site to be a huge support and there is always someone who has had experience that they are willing to share with you or perhaps talk over what options etc.
Sometimes, I have even found…[Read more]

Hello Alexis

Just wanted to say welcome (but obviously sorry that you need to be here).
I too am on Revlimid and am always interested to share experiences with others who are also using or have used Revlimid.
Best wishes
Carol

Hi Gill
Hope Stephens op goes without a hitch and he recovers quickly good luck to him, and you of course as no doubt you will be a jibbering wreck whilst its happening.
I have had a dreadful dose of flu/cold no doubt due to getting no sleep for so long and my niece brought me some amazing pills that cut it off very quickly. EchinaCold.…[Read more]

I love the discovery I made in the loft yesterday. I found in my sons boarding school trunk, my husbands uniform neatly folded with his hat and white parade gloves. Underneath it was a white thick folder with a large number of official looking documents, all of them commendations that I had never seen before.
In the same folder was a wallet I…[Read more]

Im So sorry Sarah,
I imagine you must be numb with all that is being thrown at you at the moment.
Im sure you are shock but unable to feel it due to the shock of losing Gordon.
Think its time to slow down and take a deep breath. Relax and just sob. life is so bludy unfair.
Dont we know it.
Private message me if you want to talk I can listen…[Read more]

Fantastic News Dai! Here is too a very long remission time!!

David was supposed to start his 6th cycle today but he has been admitted feeling under the weather. So they are waiting to see whats what and do a few tests and a scan.

Hope the last two cycles are being kind to you!!

Love
Meike

Dearest Min,

I don't know what to say. Peter's passing has come as complete shock and so sudden. My heart goes out to you and your family! You are a remarkable woman who has been supporting her husband in the most loveable way. You are also incredible at advising, helping and supporting other members of the MM family. Please keep strong! And…[Read more]

I had another rant with a credit card company today…. speaking to an unintelagble man in India…. well you can imagine my reaction to him not understanding my Geordie accent. when I asked to speak to someone in England he said they had no office in England…mmmm the blank statement came from UK so he got the other two barrels and needless to…[Read more]