Hi Meera
I don´t have any knowledge of plasmacytoma I´m afraid but I did see a mention of it under one of the other topics. I´m sure you will get plenty of response from people with experience of this as soon as they see your post. I´m sorry your struggling with the tiredness – I am very tired and stuggle to even do the housework let alone loo…[Read more]

Hi Julie
Glad to hear you are stable.
I am curious to know if you feel spending a lot of time in a sunny climate helps with some of the effects of MM? We lived in Spain until three years ago when we had to return to England as we had an elderly mother who was beginning to need care. However, we are now in a position whereby we could spend…[Read more]

Oh Bridget
Im so sorry to hear this news what a bug ger . and the rest.
Apparently its a little knows scientific fact that swearing is effective. what at i cant remember due to altziemers !
No one knows your body better than you and your instincts are correct so make sure you always listen to them.
i dont know what the plan will be for…[Read more]

Hi Helen
Picked him up as 1-30pm he has been asleep in bed since, having had no sleep in there so dont expect him to apear much before am tommorow. Back on Friday for bloods and GCSF at 36 and again on Sunday to ward 33 so if you still in then will call on you.Hope its going well.
Min

Hi Dai,
Whilst I wait for the phone call to go collect Peter, I remembered that when he had his back op last week he had to wear the compression socks( delightful) and the nurses gave him a plastic bag to put on his foot and ankle which allowed the socks to slip on quite easily.
Hope the swelling is still receeding and the velcade side effects…[Read more]

Hi Eve just a quick one.
Get him to take the Dex 1st thing in the morning before he goes to the unit, It might have worn off by bed time!
love
MIn

Hi Helen
He is in 33, gets his stem cells back at about 9-30am should be going home by 11 ! my daughter and he have both asked for him to stay in but he is in a 4 man room with emergency leukemia admisssions so it is probably safer for him to be at home. Not at all happy about having to return to 36 for bloods as there are often a lot of sick…[Read more]

Hi
So sorry things have not gone as smoothly as they should have done.
RegaIrding the Myeloma 11 trial I have been on it for the past year. I can only tell you that in the main I have been very well looked after and the only time when I have not felt quite so confident was when I went for my sct and was not under the direct care of my own…[Read more]

Hi
Just a quitck note to say welcome to you and your family and sorry your Dad is having such a rough time of it.
You and your Mum are doing a smashing job and I am sure your Dad must feel so grateful to have the support of such a lovely family even if he can´t always show it when he has to take some of the medications – they do make people…[Read more]

Hello
So sorry you have all had such a sad and difficult time – and indeed still are. Even though you sound to be coping bravely you must be worried sick yourself whilst trying to be reassuring and positive for your dad. I´m glad you came here to talk as there are lovely people here who understand how much of a help it is to get things off your…[Read more]

Hi Meike
My husband had a balloon kyphoplasty on Friday last, this is the second time he has had one but on this occasion he is suffering from more 'discomfort' mostly in his ribs but he says its muscle pain.
Probably from being thrown well not exactly thrown but you know what I mean! over from his back to his tummy for the op.
When we were…[Read more]

Hi All,

Sorry we have not been here in a while?things have been a tad busy. Thank you all for your kind and encouraging words! David has now completed his 4th cycle of Velcade and by the look of it will be doing an other 4 before preparing for SCT?

The last couple of weeks have been difficult for David. His pain levels in his back have…[Read more]

Hi Craig,
I am just a carer of a MM sufferer who in 2 short years has undergone CDT therapy followed by a stem cell transplant and more recently a relapse with velcade and revlamid therapies.
Not being the patient I don't feel qualified, but i think there are a good many people who would love to hear more and have more input and indeed…[Read more]

Hi Roz
It all looks superb, someone has put a lot of hard work in and you have obviously put a lot of thought into it.
Low maintenance in order to manage it. Bring on the Birds
I love your garden bench, Michael will be watching you sitting there, and possibly sitting beside you silently.
Love MIn

Helen,
PS. So glad to hear your going into sct at 0 – fantastic starting point for you I feel quite excited that you must surely have a super long running remission.
Fingers and toes crossed.
Carol xxx

Thanks Helen – at least I´m forwarned then not te expect too much at first.
Take care
Carol xx

Hi Helen

In that case we are doing things in a slightly different order as I have had my sct (which by the way has left me now with 0 yes zero paraprotien level!) and am now just finishing my 3rd cycle of Revlimid.

They seem to be so well practiced in this procedure now that I am sure everything will go smoothly and know are in good hands so…[Read more]

Hi Helen
Thanks for the update about stiff joints and sickness etc. Sounds like you at a similar point of treatment to me – I have just finished my third month of Revlimid.
Glad to hear that things might be settling down over the next few months and I might be able to get a bit more active.
Have a good weekend
Love Carol xx

Nice one Helen, Mine will be bacon and tomato! See u monday
Peter is sore but sleeping, Im off to the shops for some treats.
Min

Hi Gina
Glad to hear things are a little more positive. You sound such a lovely caring daughter – your mum must feel so lucky to have you but please do look after yourself too won´t you? My carer is my husband who spent the first 9 months up to transplant worrying himself sick and hardly every having a break from thinking how he could make…[Read more]