Pregabalin, I remember Peter shaking with that stuff, it was awful turned him into a slavering inert geriatric. It took a long time to get his mix sorted but on a weekly basis there was something new to try.
Pain is awful to bare, my little sojourn in the pain stage was my sciatica and that was bad enough but at least I knew it would go away in…[Read more]

Today I had a day of pampering at the hairdressers and got some more of my long hair shorn and Peter had a day of housework, followed by some sunbathing. Progress at last.
Last monday was the day he came out of hospital, so one week on and he has got his small dumb bells out to improve his arms strength. He used the hoover& put the washing…[Read more]

Hi Angelina
Im so pleased Johns short visit home was successful, I pray that he will be well enough in short time to get home permanently, shame the diahhorea came back, I expect it was the excitement of going home that did it, and no doubt he had been awake all night anticipating going home to cause him to sleep when he got there.
Poor lamb.…[Read more]

Hi Dai,

Thank you so much for your very encouraging reply!

David has started his 3rd cycle of Velcade on Friday and had a couple of good days on Dex, we even took a trip to our local B&Q yesterday for some manly shopping. He took great delight in using one of those electric scooters they have in store for people who are not so…[Read more]

Aw Kay
I feel for you, the loss of hair is a monumental event. i remember shaving Peters head in February last year and crying as I did it, after his 1st dose of melphalan, for harvest it was just growing back in May when he had his 1st sct so more shaving needed.
Last Sunday he was in hospital and I had to take in the shaver and do it again.…[Read more]

Hi

Hope everything goes well – thinking of you.

You are so pretty I think you will look good with or without hair – lovely bone structure!

Best Wishes

Carol xxx

Hi Bridget,
How are you doing on the new painkillers? Better I hope.
The man gets stronger each day but right now he is worn out with watching the mens finals. while I have been acquiring a tan in the garden.
Today was a breakthru as he made lunch for me!!!!! Only a sandwich and crisps but beautifully served and cut. I know he can do it when…[Read more]

Hi
No wonder your emotional – after the ups and downs you have had just lately I think your allowed!
My lead up to transplant didn´t always go quite to plan either and I feel for you having to take the dex again – bad enough that your hyperactive (I was rather aggresive too which is really out of character for me) but it was knowing that when…[Read more]

Hi Debs
I wonder if we are both on the same trial Myeloma 11? I have had my transplant and am back on Revlimid now (looking back I think I tolerate this better than I did the Velcade that I had for a couple of cycles prior to the transplant.
Anyway, hope the side effects are wearing off – I do get tingly feet and hands but not as badly as…[Read more]

Hi
I had Velcade to get my nasty boy count down for a couple of cycles before my transplant. I coped quite well on it – expect your mum is on it by now and you are finding out for yourselves.

Anyway, good luck to you and your mum – I´m so pleased you have each other.

Very best wishes to you

Carol xxx

Hi Tom

Hope you are keeping well and enjoying your remission – we are lucky to be here arn´t we?

Thanks for a lovely, cheerful and positive note – so very welcome! Just to let you know that I rode my husband´s horse yesterday who hasn´t been out of the field for a year and didn´t really see why she should have to leave her buddy (my hor…[Read more]

So if you don't ask you don't get, these consultants need to read more Jo. Its not good when the patient is keeping the consultant u to date with current events.
Love MIn

David I am so jealous,
I want to cruise down the Rhine. Or anywhere else come to that matter. But i think our traveling days are over.
You enjoy life to the full whenever the opportunity presents itself. Whisper about it when you come back or I will be green with envy. Lucky lucky man
Min

Oh Gill,
I know just how you feel, its a week now out of hospital with Neutropenic sepsis,sort of the equivalent of an SCT without the stem cells if you know what I mean…… he is becoming a fad. I want I want I want just like a 3yr old and when he gets it he doesn't want it. I am worn out with trying to please and now deciding just to give…[Read more]

Ah sleep, where for art thou. Not in my bleeding house anyway.
Peter can sleep on a sixpence at the drop of a hat, but staying asleep without a visit to the loo now thats another thing. When he is well he walks the dogs at an ungodly hour usually 5 or 6 am poor dogs miss there lie in. He then comes back to bed and has the next 4 hours or so.…[Read more]

Hello Eve
Right now I am exhausted… don't think I have been this tired in a long time. Peter is still very weakened, ( bare in mind I am married to a house husband who loves the hoover and iron!
The most he can do is get out of bed mid morning and take all the medication he needs and watch the war. GRRR on sky.
I think I am both…[Read more]

Hi Belles,
I have read of one person who had this but I think it was in the USA, whoever it was and Im sorry I cant remember I do recall they were very high profile within the usa, maybe they were something to do with the International myeloma foundation, I feel they may have spoken in the house of representatives about it. Sorry ant remember…[Read more]

Thank You Roz.
We had a flying visit to the day ward today for bloods and the results are finally going his way. Neutrophils are 1.5 at last after 2 weeks of 00.2 ..He is feeling fine ( ish) compared to the past 2 weeks when all he wanted to do was sleep and stay in bed)
The plan is 4-5 weeks for a recovery period followed by further melphalan…[Read more]

Hi Eliz

Thank you for taking the trouble to write. I still can´t quite believe that I am in remission myself! Yes, my first ride was a real triumph, not just for me but for my horse who has never quite understood why mum wasn´t out and about. He was really cross whilst I was away having my transplant and made sure that I new exactly how u…[Read more]

13>0 13>0 over and understood. Now close your eyes and visualise… some people actualy believe that stuff and whatever it takes…. Good Luck to you.
I am sitting here listening to the Tennis while Peter is watching it having missed all last weeks games and sharipova or whoever she is is making a hell of a racket (pun) while the little…[Read more]