Hi Gill,
I was wondering where you had got to and this explains why we had not heard from you for a while.
I hope Stephen starts to pick up soon, I know how difficult it is to watch them feeling so poorly. Peter had his 1st GCF injection today following mega melphalan last friday and felt rather sickly for a few days but has not been too ill so…[Read more]

Hi Dai,
sorry to hear your not feeling too perky, Hope it gets better soon. Peters soda stream was bothered by velcade and his GP gave him some rather nice tablets that returned it to normal. Think they were something for an enlarged something or other you men have, it did work a treat so if it persists see your GP he did tell them on the day…[Read more]

Hi Marion
There is nothing much more I can add to the excelent advise of all of the above, however one of the things that I learnt at a myeloma infoday was that the people who are on trials, are having more personal attention than normal patients and it is thought that this very fact was a positive one from the patients point of view and…[Read more]

Dai
I think your songs are a lovely way of putting the mm aside for a while and very welcome too, your talents are amazing. Long may they entertain us.
Min

OMG Shirley,
What you playing at? you go to all the bother of having a special stem cell transplant and then you decide to learn to dive without water. :-S
I think you just like hospital food and wanted to get back in there!:-/
Thank god your Steve was there,when you needed him. I hope your taking it easy and wearing a big elastoplast, or…[Read more]

Peter got a quick phone call yesterday to say they had a 'slot ' free due to a cancelation. Today he had is 1st mega dose of melphalan. Taken with an injection of anti sickness and 2 iced lollies…..
We came home and he had had his lunch on the day ward and was starving so had a cheese and tomato sandwich.. but only managed to eat half of it…[Read more]

Eve you cant leave me in suspense like that, you have to tell me where you bought on line! I need all the help I can get as cant concentrate at the moment.
Peter is going in tomorrow for his 1st mega dose of Melphalan.. timing as usual stinks as I had plans to go to granddaughters birthday..A mere 250 miles and several nights sleepover. Never…[Read more]

Ha Ha Ha,
Peter had that all thru his Revlamid. Much better now on Thalid. (for now) it wont last never does. We have got over the shock now and just getting on with it as usual.
Time I was in bed or no gardening will be done as I wont be able to get out of bed! Sounds like the kitchen will be to your liking. Im just going over the…[Read more]

Wow David,
Busy busy busy. Have a wonderful time. I learnt how to drive in the dark when a rooky PC in HOIK( thats how we pronounced it)
Morpeth is not too far from us and if on your way back south you go via the Tyne Tunnel call in on us if you like for a coffee. Take it easy and dont get too tired.
Love Min

Oh Bridget I do envy you the nice weather, warm here but not wonderful.Kitchen will be just right and hope your able to have some input into it… Eve see the forces benevolent fund for help with getting allowances for slim.
I had decided when I retired/redundant I would have a new kitchen, last weeks fright at the hospital made me decide to put…[Read more]

Hello Again.
Do I think that Peter got his mm being near to fuel from aeroplanes????
No I do think all the many injections he got to go to the Falklands and anywhere else may not have helped.
But in reality, there are many people on here who have never been on or near a plane or ship so how did they get it?
In Peters case I think his cards…[Read more]

Hi Eve
Peter had just finished his 6 months of injections for blood clots caused by the medication.. It took about 6 weeks before they diagnosed that then.
Realistically we have to understand that medicine is not an exact science and they do often get it wrong. But why do they get it wrong when you can tell them what it is… if I take one of…[Read more]

Thank You everyone for your support, Its good to know we are not alone on the roller coaster.
The delightfull dex kicked in today and delivered a feeling of a well being and big appetite(much needed due to recent weight loss of one and a half stone) and the nasties.. Had a little moment of shouting and loss of temper…………him not…[Read more]

Hi Angelina,
When Peter was first put on Tramadol and codeine we went to stay at my daughters and he woke up in the morning telling us he had been talking to a variety of dead people relatives and friends who had all been giving him advise on how to beat his kidney failure etc.
We thought he had gone doolally! He cried like a baby because…[Read more]

Its Brilliant Dai, and and and you have a Minnie, the only other minnie I know is married to mickey mouse!
Cant wait for it to be published as you have me hooked. Good Luck and can I have an invite to the booker prize please?
Min

Hi Alistair
I can recommend the Freeman in Newcastle as it has a new purpose built cancer department and two wards and a day ward not to mention lots of absolutely wonderful and understanding staff. A hospital is only as good as the staff who run in and the commitment of the team in Haematology is amazing. We have met some lovely patients too…[Read more]