Hi Jo
One of the consultants we saw a few weeks ago, was German who had just spent two years in America. He had some amazing thoughts on the subject and I think he will find working in the NHS for a few years quite a step back from what he is used to. If velcade works on you its wonderful, its so sad that mm sufferers have to try everything to…[Read more]

Thanks, its just sinking in Im going to have a life again….. have a lovely trip and don't forget the photo when you come back, have a lovely time with your new grandchild. And of course her parents.
Luv Min

Hi Keith,
You don't know how much you appreciate the NHS until you need it, but we have to improve or stay the poor man of Europe for cancer survival rates. There is no easy answer and change hurts, but if its better so be it.
Early diagnosis is the key and those people with MM often do not get this. Perhaps the private sector would be paid by…[Read more]

Due to all the fingers and toes crossed by the beautiful people on here, I have an appointment with HR on valentines day to discuss my redundancy package…………….yippee, I will be drawing my pension soon.
Luv Min

Hi Jo,
He was on a low dose of aciclivor following the breathlessness which turned out to be DVT so he takes half a tablet three times a day. Most days now his ankles and feet are swollen, cannot work out the cause, some days its worse than others but he does have water tablets to deal with it.
The sciatica is much better thanks, not gone…[Read more]

Thanks Bridget,
Actualy today he said he felt better than he has in ages. His reasoning being the velcade must be out of his system? In fact he remarked that he was feeling stronger, than he has since he started on velcade really did not do him any good. what little muscle tone he had gained before his relapse was lost whilst on…[Read more]

Gaye
There you go blazing the trail for the rest to follow. Peter was meant to have a second balloon kyphoplasty in Dec and two days before it had to be cancelled, because of his darned newly acquired thrombosis. He was absolutely gutted as the relief from the first op where two were done was brilliant for him. His D dymmer numbers are getting…[Read more]

Dear Bridget
Send your other half to the pub on Tuesdays so you can watch in peace and on a big screen. Peters clinic days are Tuesdays ,so egg and chips and the hand control are my idea of heaven on Tuesday evenings. Have been known to go to bed very early in order to watch undisturbed. Otherwise its Sunday morning while doing the ironing.
I…[Read more]

Gaye,
Im not a fan Im afraid, work in a Scenes of Crime office and hope it does not alarm anyone because unexplained deaths are sadly regular events…. Well actualy its burglaries and car crime. When I used to watch it with the previous main character it was so far from the truth I lost interest.
But I do love Holby have watched it…[Read more]

Whew Sarah,
I would be beside myself with worry now, I hope they are ok and keeping in touch with you to allay your fears. Kids who'd have them!
Min

Thanks Bridget, he is taking his lansaprazole for no other reason than he has been getting dreadful heartburn and indigestion since starting the Revlamid, he should not need it as he came off the aspirin when he went onto daily heparin injections. But I will get him back on the Aciclavir. He also has started an itchy head, anyone know if itching…[Read more]

Happy Birthday to you Bridget,
Im sure you had a lovely day with the grandchildren, and never mind if your knackered you can have a lie in tomorrow.
I have had a lie in all this week and its a wonderful thing I could get used to. Once I get my bus pass I will be lying in more often. OOps wishing my life away.
I hope you get on with the dex…[Read more]

Dear Gaye
Now you know why you had all the pain. Im surprised that you did not have raised calcium levels prior to the scan.
Im sure they will get to grips with it soon and hopefully you have the correct pain killers to make you comfortable without being comatose!
Its interesting from the point of view that you must be on Zometa or some…[Read more]

Hi Gill,
I know exactly how you feel, Peter's revlamid and dex is causing some problems. Fortunatly the dex bit is over with now, but the Revlamid is causing a lot of fatigue and very swollen legs ankles and feet.So much so he had given up work again. We were told that the 1st course will be difficult but it is so dissapointing when he was so…[Read more]

You were right. He is back to 'normal' whatever that is. Sleeping better and dexing as normal. >:-( last day tomorrow. Eating me out of house and home. (Never put any weight on while on velcade and dex) but never had any munchies with it either.
The sciatica is getting better having used a Tens machine… Could get addicted to that.>:-)…[Read more]

Thanks Sarah,
My son came round today and did something sort of remarkable. 1st of all he made me lie on the floor, then he taught me a Pilates exercise for my back and leg pain. and it worked. so far so good. All of a sudden I was transported to that moment when your children start to give you advise. Not that he is a child at 34yr old. But the…[Read more]

Hi Bridget,
Now that the RT is over you can either relax and recharge your batteries or have a party. If it were me I would be relaxing.
Hope its not too long before the effects of all your travels and traumas take effect and your pain free.
Peter RT was effective after about 4-5 weeks but everyone is different so may be sooner for you.…[Read more]

Well first things first, peter slept well until 4-30am when he woke up with violent diar—-trots. cant spell it! Then he got up to go to work, only does 3 hours but has not been feeling up to up for 5 days now . At 8am he crawled back into bed having just taken a sicky tablet as he wanted to throw up. Altogether not a good start. He is sleeping…[Read more]

Gaye
That was very moving, and in a way helps me to understand how my husband has been dealing with his mm.
he is very private and at the outset did not want me to tell anyone what was wrong with him.
I on the other hand am an open book. If its out its not festering inside me.
I remember when he was diagnosed. I went home in distress more…[Read more]