NIce to see you Joe, I am pleased you did it, the moon face is familiar to me as Peter has it at the moment.
According to the Dr Peters kidneys are ok, or at least the figures show that, in truth he has puffy eyes on almost a daily basis,(great big bags under them) its like pulling a pint with regards to froth. And the oil slick left after…[Read more]

Hi Laura,
Im so sorry you find yourself joining our little group. But I am glad you found your way here. You sound like an amazing young person who has your Mum at heart. For that reason I hope that she reaches the end of her treatment with your help, and you can both get on with living your lives again.
Laura do you have any support from a…[Read more]

JOe
You need to go to the newcommers button and press the link for how to change your picture you must be signed in to the site to be able to do it.
Print it off to make it easy on yourself. Or get a clever relative or neighbour to do it for you.
Min

Gaye
Not on the same scale as you but my sciatica pain was not responding to anything you can buy across the counter, the Dr gave me 30mg of codeine. to be taken with 2across the counter paracetamol and 2 cross the counter ibuprofen. The pain relief of all these things together is wonderful. Taking all them is not so good but whatever it takes…[Read more]

OK Jo
lets see if I can help you here. Sign in Press your name which will take you to an edit profile page. Press the profie picture, drag it in to the centre square and press the scale arrows on bottom left of your photo, until it fits into that square. Finaly press the save button bottom right hand side of your picture. Fingers crossed that…[Read more]

Hi Jean
Well that sounds interesting, dont know if I can do that. The closing date was 10Jan for applications, and of the 450 they wanted they got 395.
The package is enhanced in as much as I will get 3times the normal redundancy payout, and my pension, (like you 20yrs) would have been penalised for going before I am 65yrs will not now be. I…[Read more]

TOM
You know I thought I was going loopy the other day when I posted and it got lost in the ether. Im kinda pleased to hear its not me going gaga and its happening to others too. My Mum used to do her false knashers in bleach too.
With regards to zometa, Peters been having for a year past August. But only every 6weeks. His Dr has had 2 patients…[Read more]

Found a bar of proper soap in the holiday bag, (Pears do you remember the pears advert) and can confirm it did NOT work. Picture this. Me with acute sciatica, and Peter with leg cramps. Up and down all night In fact he got worse if anything. so rang up and got a prescription for quinine off his GP. Will let you know if it works.
Min

Sorry to hear of your Dexastrous up chucking! I cant imagine having to take that many pills at once. Why cant they make it into a strawberry syrup?
I cant believe those NIMBYS. But I would be inclined to say that they should be blacklisted. They may not need a hospice today, and only time will tell if they will. But in view of there…[Read more]

Hi Jenny
Its nice to hear your dad is taking little steps towards getting better. You cant rush this thing, and particularly so given his age and his new health problems.
I read you original post and was alarmed at the comments of the nurse who spoke to you. Myeloma is one of the rare cancers, and its difficult to know what she knows of it, was…[Read more]

Dear Gaye
You are an inspiration to all of us, and I do hope the new drug, works for you. Why do they have to give them such long names?
Let us know what Poma…die! is tablet or infusion?
I am curious to know, what drugs if any that you have been through have not worked on you? and what happened next so to speak. Do you have bone damage? or…[Read more]

Oh I do love a bit of good news, congratulations granny.
I am right now lying in bed with my grandaughter who as I type is breaking out in more spots……Just discovered she has chicken pox. Poor sould. I think I should be worried. but I am more worried about her. Peter is home so hope I dont take it home to him. He is on acyclavore so possibly…[Read more]

Good heavens Kieth you do have to do some travelling for your treatments. Jane Conn did peters harvest and transplant and we see her most visits to ward 36, she is truly lovely woman as are all the staff. Peter had his Bypass done in RVI and they were great too. How long did you stay in after transplant. Peter wa:-| s out the same day and lately I…[Read more]

Hi Dai,
I got the same e mail, and at the same time I got an e mail from Gill,with no content,signed webteam that I had sent her a few weeks ago! something is going on. Though the similar e mail refers to the myelomaforums.com which I may have registered at a long time ago. the Gill one refered to this site.
Time to do a virus check me…[Read more]

Hi Keith no I did mean the second dose or second injection three days after the 1st.
It took some weeks before it got really bad enough to complain in loud voice and be heard. But as he had managed to break his hand that seamed to be a bigger priority.
And it did work for a while; at first there was no response; then a few cycles later his…[Read more]

Well Kieth by now you will have had the 1st of your velcade and dex and will know all about the routine. Or lack of it, Peters first velcade was quite disorganised. He has his last one today, and mostly felt quite good and looks really healthy, belied by the fact that the velcade no longer works effectively!
The problem he had was after the…[Read more]

Hi Bridget,
Im pleased to here they are moving apace with your RT. Peter had just one massive blast when he had it, at the outset of his diagnosis. It left him feeling like he wanted to throw up, and he had a red mark where they gave him a temporary tatoo, to they could hit the right spot. The red mark was a little like sunburn and after/sun took…[Read more]

Shirls,
I wish you all the best for the future. I hope by now your back into the routine of home and family after your sojourn in hospital. Dont rush it take you time and enjoy yourself. Keep Well
Min

I will let you in on my secret Bridget giving up smoking was something I kept promising myself when Peter was diagnosed. I watched him stuggle thru his transplant and decided then if he could put up with that I could give up smoking. humph. to help me I enlisted the help of an electronic cigerette. Looked like a real ciggy, produced vapour instead…[Read more]