Hi Amelie.
I dont think you can take chances with this disease and flu, I think John should see a Dr and get some Tamiflu, and or Aciclivor anything else he may recommend. He still has a very immature immune system which will need some help.
I dont have myeloma my husband does, but I did have flu about two months ago for the first time in my…[Read more]

I think I am going mad bridget I remember typing an ansa to you and now cannot find it.. so excuse me if I appear crazy. Excuse me if I have posted it somewhere wrong. I have obviously overdosed on luxury chocolates that have been telling me to eat them for two weeks now! n order that I could no longer be tempted by them. apart from feeling…[Read more]

Dear Sean You must be gutted by the news about your transplant. I know how upset Peter was with just 5months with no meds
Peter gets the full disability allowance including car. The price 4 crushed vertebra a life on pain killers and kidney problems, and of course myeloma. He had never previously claimed any allowances in 43yrs as a worker.…[Read more]

HI KIETH AND GILL.
Peter is well into his velcade now and so far the only side effects have been. Hiccups…and DVTs but todays appointment with a brand new registrar (who's English left much to be desired, and clothing looked like it was from a charity shop) hit him with bombshell the bad news that his numbers have gone thru the roof since…[Read more]

Sorry to hear your news, its a bummer. Shame you had to join the relapse group But on the plus side you know the drill, and new treatments are better than old and hopefully longer lasting too.
Min

Hi Gill
Peter is in the middle of his 4th cycle of velcade. Im afraid the dreaded dex is taken throughout the courses.
I read all the information regarding the lowering of doses etc and under the skin instead of iv. Initialy I thought oh that ineresting as it means he can give himself them, as he does with the heparin he has to inject daily…[Read more]

I recommended them to my brothers neighbour who has a 12yr old border collie and she just sent me a message of thanks to say they have made a big difference to her dog too.

Hi Sarah
I know what you mean. I wanted to give up work when Peter was diagnosed and decided the human contact at work was going to keep me sane. More recently I received a letter from M& S where I worked 20yrs ago to tell me they are gong to pay my pension next month when I reach 60. I decided then that once the mortgage was finished the M and…[Read more]

Jenny
The booklets you would like to see can be found and downloaded they are to left of this page near to the top under the Title 'Myeloma Library' Hope this will help you to understand better.
Min

Roz
You are very much in all our thoughts at this time, I am sure we will all be thinking of you tomorrow.
God give you strength to get through this evening, and to deal with tomorrow too. If it snows it will be like a blanket, making the world look clean and fresh. Its not an omen its nature. At its best and worst. Hugs are sent in abundance…[Read more]

Hi Jenny
Your poor dad is going through the mill. Im sorry he is having so many problems but hopefully they will get his kidneys responding to treatment and the fear for your step mum will go when she realises he is responding to there care.
I would say don't let him go home until he is responding well or he will be back again before you know…[Read more]

Dai
My oldest dog Ben had got to the point that he could not get up off his bed to go for a walk he was so stiff, he dragged his feet on all our walks and the two younger dogs were not at all pleased that we went everywhere with him bringing up the rear so to speak. I got to believe he was not long for this life. That was about 4-5 moths ago.…[Read more]

Hi Lyndsey,
You describe exactly what my husband suffers from as a result of 4 crushed vertebra. His problems of pain are mostly to do with the ribs sitting on the pelvis or hip bone due to the new short torso. Big tummy and bent back looking like a hump. Smaller appetite… frequent toilet visits as all his organs are crammed into a smaller…[Read more]

You can forgive him for this dexatude Gill, we have three labradors, and they are what gets Peter out of bed in the mornings and at his worst and lowest point in the past the dogs have always been there to lend an ear.
For both of us. What better way to get out in worst of weathers, and the best of weathers.
I moan like mad when its raining as…[Read more]

Hi Jonny,
I can empathise with you, as I always felt Peters consultant had no bedside manner from the day he told him what he had and how long he had!
Its now over 16month since we first met and I know now he does his very best for Peter, and gets the results we want to hear. Not always delivered with warmth or feeling, but we have gotten to…[Read more]

The breathlessness may just be part of the anxiety. I tried to give up smoking ( am now a non smoker) and in doing so used an alternative to nicotine which gave me palpitations and made me breathless) The anxiety of being breathless made me more anxious and more breathless. As the fear got worse I gave up smoking without any further help!!!!!!!!!…[Read more]

Hi Ron
Like you I am married to a MM sufferer. At diagnosis I found it very difficult to to bring Peter out of his withdrawn state. For quite some time he became rather insular and difficult to talk to about his illness. Eventualy he had a long chat with our Macmillan nurse and the myeloma nurse specialist. But it was not until he could see from…[Read more]

Hi Gill
Peter was having velcade on Christmas Eve which meant, Dex then and on Christmas Day too. so I know exactly where your coming from. We now have a sort of understanding where I say' Peter that is not you talking its Dex"
He usually replies "I did not ask for Dex" but for a short while we can agree that Dex is here uninvited.
Dex…[Read more]

Whatever is ahead of you, may you find strength, calm and love to help you through. And may the New Year bring you hope.
Warm wishes to all
Min